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Fact Sheets

"Heart of the Matter" Fact Sheet Series

The Heart of the Matter (HOTM) fact sheet series was created to answer the growing need to provide complex information in a simple but accurate manner.  In keeping with the NMF’s commitment to providing educational materials for everyone from students to physicians, the HOTM series provides information in easy to understand language.

The HOTM series is also perfect to use at community health fairs and information tables.

If you have an idea for a new fact sheet topic, please email it to: programs@marfan.org.

 Marfan Syndrome General Information

Marfan Syndrome Facts

How to Find Out if You Have Marfan Syndrome

Marfan Syndrome: Diagnostic Criteria
 
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Marfan Syndrome: Skeletal Information (Bones & Joints)

Skeletal Features

Scoliosis

Marfan Feet

 
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Marfan Syndrome: Cardiovascular Information (Heart & Blood Vessels)

Marfan Syndrome: How to Care for Cardiovascular Problems

Marfan Syndrome: Surgery to Repair the Aortic Root

Cardiovascular Features: Common Problems

 
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Marfan Syndrome: Ocular Information (Eyes)

Marfan Syndrome: Features of the Marfan Eye

Marfan Syndrome: Caring for Dislocated Lenses

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Clinical Trial Information

Clinical Trial: Atenolol Vs. Losartan

 
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Loeys-Dietz Syndrome Information

Loeys-Dietz Syndrome: How to Care for Cardiovascular Problems

Loeys-Dietz Syndrome: Facts

 
How to Find Out if You Have Loeys-Dietz Syndrome

Is it Loeys-Dietz or Marfan Syndrome?

Loeys-Dietz: Orthopedic Issues

 

 
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Spanish Language Fact Sheet on Marfan syndrome from the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)-  ¿Qué es el síndrome de Marfan?
 
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