ASK A QUESTION EMAIL FORM
By completing the "Ask A Question" form, you can contact the NMF’s Information Resource Center. The Resource Center is staffed by a registered nurse and a licensed social worker. If Resource Center staff are unable to answer your question we will contact the NMF’s Professional Advisory Board doctors, get a response to your question, and contact you with the answer. In addition to answering your question, we will send you a customized informational packet based on the nature of your inquiry. We cannot answer anonymous e-mail requests. If you want to communicate via e-mail, please Submit the “Ask A Question” Form.
E-mail messages are not always deliverable. If you do not receive a response within 3 days, please contact us again.
CONTACT THE NMF INFORMATION RESOURCE CENTER BY PHONE
If you prefer or if you do not want to give your name, address etc., you can call the NMF Information and Resource Center at 1-800-8-MARFAN ext. 126. Your call will be answered by a registered nurse and/or licensed social worker. Please choose one method of communication to help us avoid duplication of resources.
DISCLAIMER
The National Marfan Foundation (NMF) is a health advocacy organization. The NMF does not provide medical advice or treatment. We are not a health care provider. It is important to realize that information provided by the NMF is not meant as a replacement for proper care from a doctor, therapist, etc. Information provided by the NMF is not a substitute for medical treatment or psychological care. It is vital that you talk with your health care providers regarding the diagnosis and treatment of Marfan syndrome and related disorders and your symptoms/features. Minors should consult with a parent/legal guardian when considering treatment and providers.
Health care provider information is supplied solely by the providers themselves and is not checked or warranted by the National Marfan Foundation. The NMF provides contact information for health care providers who are known to have seen patients with Marfan syndrome and related disorders. The NMF does not endorse or recommend individual health care providers. You are responsible for interviewing and selecting the practitioner. By requesting health care provider resources you understand and agree that the NMF and it’s affiliates are not responsible for any providers’ services or lack thereof.
CONFIDENTIALITY
Except with your express consent or as permitted or required by law (or as otherwise stated in the website Privacy Statement), all information you provide is strictly confidential and never shared outside our organization. Not knowing who you are, where you live and the reason for your inquiry may limit, or even prevent, our ability to respond to your questions and concerns.
NMF PUBLICATIONS
For a complete list of publications and videos please visit the NMF Store. We suggest you review the free materials we are sending before you make a Marketplace order.
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