The 26th Annual Conference on Marfan Syndrome and Related Disorders is heading for Houston, Texas, July 8-11, 2010. Come enjoy great Southwest hospitality in the middle of a vibrant international city while sharing in a unique educational and fun-filled weekend with your family and others with Marfan syndrome and related disorders.
NMF is pleased to be partnering in 2010 with Baylor College of Medicine and the University of Texas Health Science Center at Houston, internationally-renowned institutions of clinical care, biomedical research and professional education. Conference programs will be lead by experts from these two prestigious institutions and members of the NMF’s Professional Advisory Board. The conference will take place at the InterContinental Houston, conveniently located within walking distance of local restaurants and the Houston Galleria, Texas’s largest shopping mall.
More information can be found in the press release about the 2010 Annual Conference. Click Here
What can you expect from your conference experience?
Listen to the experts – and get the opportunity to ask questions -- at a general session featuring topics on surgery, research and other critical subjects.
Choose from numerous medical and psychosocial workshops ranging from “Cardiac Issues” to “Developing Your Emergency Plan.”
Take part in special support groups for parents, young adults, unaffected spouses and others
Make an appointment for a patient assessment at Baylor College of Medicine (by appointment only) with cardiologists, orthopedists, ophthalmologists, geneticists and other specialists
Make new friends at a Texas style welcome reception and organized social activities
Hear your peers talk about their personal experiences with Marfan syndrome or a related disorder at a “Living Successfully” luncheon panel presentation
Click below for highlights of the 2009 Confernece at Mayo Clinic in Rochester.
Patient Assessments
Assessments provide an opportunity for patients of all ages to receive a consultation and/or evaluation by Marfan and related disorders experts in all pertinent body systems. Physicians and specialists from Baylor College of Medicine and the University of Texas Health Science Center will join NMF Professional Advisory Board members in bringing this extraordinary opportunity to registered conference attendees. Priority will be given to first-time attendees who need assistance with diagnosis or ongoing management and lack access to specialty care at home. For more information, email marfan2010@bcm.edu or call (832) 355-9919.
Throughout the weekend there will be special educational programs, field trips and fun activities for children (ages 5-12) and teens (ages 13-19). Unaffected siblings and friends are also welcome to take part in these programs. Youngsters will have the opportunity to learn about Marfan syndrome and related disorders, meet others in their age group in a sympathetic and compassionate environment, and return home with new friends and tools for living. Children and teens attend conference free of charge if accompanied by a registered adult.
If financial issues make it difficult for you and your family to attend the conference consider applying for a conference scholarship. Funding is available to cover registration fees and hotel accommodations. Funds are limited and priority is given to first-time conference attendees with limited access to specialized medical care at home. To apply for a conference scholarship, complete the application here. The Application deadline is Monday, April 12th.
Hotel and Travel Information
The InterContinental Houston Near the Galleria is the official hotel of the 26th Annual Conference on Marfan Syndrome and Related Disorders. Located in the heart of the “uptown” section of Houston near restaurants, shopping and entertainment, the InterContinental Houston is just adjacent to the Houston Galleria mall. A great place to find shopping and restaurants to fit all styles and budgets.
Group Rate: $129 (single or double) available until June 25 Parking: $6.00 per day discounted rate
