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X-ORIGINAL-URL:https://marfan.org/
X-WR-CALNAME:Marfan Foundation
X-WR-CALDESC:Know. Connect. Thrive.
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-PUBLISHED-TTL:PT1H
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BEGIN:VEVENT
CLASS:PUBLIC
UID:MEC-9db6faeef387dc789777227a8bed4d52@marfan.org
DTSTART:20220707T040000Z
DTEND:20220711T040000Z
DTSTAMP:20210728T205900Z
CREATED:20210728
LAST-MODIFIED:20220510
PRIORITY:5
SEQUENCE:0
TRANSP:OPAQUE
SUMMARY:The Annual conference is now the E<sup>3</sup> Conference – Live and in person
DESCRIPTION:\nRegistration is open ( https://marfan.org/e3conference/ ). We hope to see you there!\n\n\n\nThe Marfan Foundation hosts a conference that provides people living with Marfan syndrome, VEDS, Loeys-Dietz and related conditions, and their families, an opportunity to learn about these conditions from the country’s medical experts, hear about the latest research, and connect with other people who are on the same medical journey.\n\n\n\nAt this conference, we provide specialized programs and workshops for children (ages 5-12), teens (ages 13-18), and adults. In addition, we offer a free health fair for those who do not have access to expert medical care near their home or lack healthcare coverage. This unique offering allows health fair attendees to meet with members of our Professional Advisory Board and medical experts from the host institution to discuss diagnosis and treatment. The opportunities we provide for medical education and community connection are invaluable to all who attend. Through our scholarships, we provide those with financial hardship assistance to attend the conference.\n
URL:https://marfan.org/e3conference/
CATEGORIES:Community,Conference,Education
LOCATION:Newport Beach, California
ATTACH;FMTTYPE=image/png:https://marfan.org/wp-content/uploads/2021/07/2022_E3-Conference-Graphics-4a.png
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