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METHOD:PUBLISH
CALSCALE:GREGORIAN
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X-ORIGINAL-URL:https://marfan.org/
X-WR-CALNAME:Marfan Foundation
X-WR-CALDESC:Know. Connect. Thrive.
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-PUBLISHED-TTL:PT1H
X-MS-OLK-FORCEINSPECTOROPEN:TRUE
BEGIN:VEVENT
CLASS:PUBLIC
UID:MEC-11734c642f4a465cd55504afec38110d@marfan.org
DTSTART:20211111T230000Z
DTEND:20211112T000000Z
DTSTAMP:20211109T002700Z
CREATED:20211108
LAST-MODIFIED:20211110
PRIORITY:5
SEQUENCE:0
TRANSP:OPAQUE
SUMMARY:Beyond The Selfie: Body Image and Life with a Connective Tissue Condition
DESCRIPTION:\nFrom long, flexible limbs to surgery scars, living with the physical markers of Marfan, Loeys-Dietz, and related conditions can weigh on a person’s body image. This 90-minute personal perspectives webinar will be led by Dr. Brad MacNeil, a licensed clinical psychologist and assistant professor at Midwestern University in Glendale, Arizona. Panelists Kendra DiPinto (Marfan), Adriana Rivera (Marfan), and Brandon Crawford (LDS) will share their thoughts and experience with body image and living with Marfan and Loeys-Dietz syndrome.This discussion will focus on body image questions relating to Marfan and Loeys-Dietz but can apply to many conditions presenting with external features. Questions are encouraged and can be submitted along with registration.For further information, please contact Angela Crist, Loeys-Dietz Syndrome Foundation director, at acrist@marfan.org ( mailto:acrist@marfan.org ).\n
URL:https://marfan.org/calendar/beyond-the-selfie-body-image-and-life-with-a-connective-tissue-condition/
CATEGORIES:Empowerment Series,Webinar
ATTACH;FMTTYPE=image/png:https://marfan.org/wp-content/uploads/2021/11/Beyond-the-Selfie-.png
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