BEGIN:VCALENDAR
VERSION:2.0
METHOD:PUBLISH
CALSCALE:GREGORIAN
PRODID:-//WordPress - MECv7.19.0//EN
X-ORIGINAL-URL:https://marfan.org/
X-WR-CALNAME:Marfan Foundation
X-WR-CALDESC:Know. Connect. Thrive.
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-PUBLISHED-TTL:PT1H
X-MS-OLK-FORCEINSPECTOROPEN:TRUE
BEGIN:VEVENT
CLASS:PUBLIC
UID:MEC-5ff37811dd20fbf31dc7b9abf72a9754@marfan.org
DTSTART:20220310T000000Z
DTEND:20220310T010000Z
DTSTAMP:20220124T195000Z
CREATED:20220124
LAST-MODIFIED:20260601
PRIORITY:5
SEQUENCE:5
TRANSP:OPAQUE
SUMMARY:VEDS Parents of Adults (18+)
DESCRIPTION:\nIf you are a parent of an adult (18 years and older) with VEDS, we invite you to join other parents to discuss your experiences. This group will be hosted by Ryan Rodarmer, director of The VEDS Movement.\n\n\n\n\n\n\n\n*Please note, every member wanting to join this VEDS Connect group should have an adult child with a genetically confirmed diagnosis of VEDS to attend. We will request that you confirm that you have an adult child with a VEDS diagnosis before admitting you to this group. We rely on your honesty to keep this a safe space for group attendees. If you do not have an adult child with a genetically confirmed diagnosis of VEDS, please sign up for the Seeking Diagnosis and Newly Diagnosed group instead.*\n\n\n\n \n\n \n\n\n
URL:https://marfan.org/calendar/parents-of-adults-with-veds-18/
CATEGORIES:VEDS,VEDS - Support Groups,Virtual Support Groups
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://marfan.org/wp-content/uploads/2022/01/Untitled-design-98.png
END:VEVENT
END:VCALENDAR
