BEGIN:VCALENDAR
VERSION:2.0
METHOD:PUBLISH
CALSCALE:GREGORIAN
PRODID:-//WordPress - MECv7.19.0//EN
X-ORIGINAL-URL:https://marfan.org/
X-WR-CALNAME:Marfan Foundation
X-WR-CALDESC:Know. Connect. Thrive.
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-PUBLISHED-TTL:PT1H
X-MS-OLK-FORCEINSPECTOROPEN:TRUE
BEGIN:VEVENT
CLASS:PUBLIC
UID:MEC-c5bb37ccd660045a83ee860888899102@marfan.org
DTSTART:20250115T010000Z
DTEND:20250115T020000Z
DTSTAMP:20241213T000600Z
RRULE:FREQ=MONTHLY;WKST=SU;BYDAY=2TU
CREATED:20241212
LAST-MODIFIED:20241212
PRIORITY:5
SEQUENCE:6
TRANSP:OPAQUE
SUMMARY:Support for Parents/Guardians of Children with Early-Onset (Neonatal) Marfan Syndrome
DESCRIPTION:Are you a parent or guardian of a child with early onset (previously called neonatal or infantile) Marfan syndrome? Is your child 18 years old and younger? If so, we invite you to join other parents to discuss the challenges of raising a child with these conditions. This diagnosis is generally reached by the child having severe symptoms of Marfan syndrome at birth or shortly thereafter.This group meets on the second Tuesday of every month at 8 pm EST.\n\n\n\n\n\n
URL:https://marfan.org/calendar/support-early-onset/
CATEGORIES:Community,Marfan - Support Groups,Virtual Support Groups
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://marfan.org/wp-content/uploads/2024/12/earlyonsetsupportgroup.png
END:VEVENT
END:VCALENDAR