BEGIN:VCALENDAR
VERSION:2.0
METHOD:PUBLISH
CALSCALE:GREGORIAN
PRODID:-//WordPress - MECv7.19.0//EN
X-ORIGINAL-URL:https://marfan.org/
X-WR-CALNAME:Marfan Foundation
X-WR-CALDESC:Know. Connect. Thrive.
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-PUBLISHED-TTL:PT1H
X-MS-OLK-FORCEINSPECTOROPEN:TRUE
BEGIN:VEVENT
CLASS:PUBLIC
UID:MEC-419e4410da152c74d727270283cb94ce@marfan.org
DTSTART:20251015T170000Z
DTEND:20251015T180000Z
DTSTAMP:20250724T195100Z
CREATED:20250724
LAST-MODIFIED:20250724
PRIORITY:5
SEQUENCE:11
TRANSP:OPAQUE
SUMMARY:Living with Stickler Syndrome: Professional and Personal Perspectives
DESCRIPTION:\nThis webinar will highlight life with Stickler syndrome from clinical and lived experience viewpoints. Dr. Taran Youssefian Blakstvedt, a licensed clinical psychologist at the TRS National Resource Centre for Rare Disorders in Norway, will share preliminary findings from her ongoing research on quality of life in individuals with Stickler syndrome. In addition, three community members will share their personal experiences and discuss how they navigate life with Stickler syndrome.\n\n\n\n\n\n\n\n\n\n\n\n \n \n\n
URL:https://marfan.org/calendar/living-with-stickler/
CATEGORIES:Stickler,Webinar
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://marfan.org/wp-content/uploads/2025/07/Living-with-Stickler-Webinar-820x410-1.png
END:VEVENT
END:VCALENDAR