BEGIN:VCALENDAR
VERSION:2.0
METHOD:PUBLISH
CALSCALE:GREGORIAN
PRODID:-//WordPress - MECv7.19.0//EN
X-ORIGINAL-URL:https://marfan.org/
X-WR-CALNAME:Marfan Foundation
X-WR-CALDESC:Know. Connect. Thrive.
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-PUBLISHED-TTL:PT1H
X-MS-OLK-FORCEINSPECTOROPEN:TRUE
BEGIN:VEVENT
CLASS:PUBLIC
UID:MEC-da383b7f4fb8b92bb70373274bfa6879@marfan.org
DTSTART:20260408T170000Z
DTEND:20260408T180000Z
DTSTAMP:20260206T204800Z
CREATED:20260206
LAST-MODIFIED:20260304
PRIORITY:5
SEQUENCE:4
TRANSP:OPAQUE
SUMMARY:Insights from the LDS Natural History Study at NIH: Audiology and Otology
DESCRIPTION:\nInsights from the LDS Natural History Study at NIH: Audiology and Otology offers an in-depth look at hearing and ear-related findings emerging from the Loeys-Dietz Syndrome (LDS) Natural History Study conducted at the National Institutes of Health. This webinar will be led by NIH experts Jeffrey Kim, MD, and Julie Christensen, M.S., who will share current insights into audiology and otology as they relate to individuals living with LDS.\n\n\n\nParticipants will learn about how hearing and balance may be affected in LDS, the types of assessments used in the Natural History Study, and what researchers are discovering about patterns, prevalence, and clinical implications. The presenters will also discuss why monitoring auditory and otologic health is important for individuals with LDS and how research findings may help inform future care and awareness. This session is designed for individuals with LDS, caregivers, advocates, and clinicians seeking a deeper understanding of the auditory aspects of the condition and the role of ongoing research at NIH.\n\n\n\n \n\n\n\n\n\n\n\n\n
URL:https://marfan.org/calendar/insights-from-the-lds-natural-history-study-at-nih-audiology-and-otology/
CATEGORIES:Medical Research Series,Webinar
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://marfan.org/wp-content/uploads/2026/02/Insights-Webinar-Block.png
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