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METHOD:PUBLISH
CALSCALE:GREGORIAN
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X-ORIGINAL-URL:https://marfan.org/
X-WR-CALNAME:Marfan Foundation
X-WR-CALDESC:Know. Connect. Thrive.
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BEGIN:VEVENT
CLASS:PUBLIC
UID:MEC-e56dbe0f3e1c9cecf699a16e06a98cae@marfan.org
DTSTART:20260319T230000Z
DTEND:20260320T003000Z
DTSTAMP:20260220T204200Z
CREATED:20260220
LAST-MODIFIED:20260304
PRIORITY:5
SEQUENCE:3
TRANSP:OPAQUE
SUMMARY:People’s Perspectives: Living with Loeys-Dietz Syndrome
DESCRIPTION:\nFor the first time, the Loeys-Dietz Syndrome Foundation Canada and the Loeys-Dietz Syndrome Foundation – a division of the Marfan Foundation – are joining forces to bring you real talk about LDS from those with lived experience. Join four community members – two from the United States and two from Canada – for this dynamic moderated discussion. Registration is free but required. Your advance questions to brandcomms@marfan.org are most welcome!\n\n\n\nPlease note: registrant information will be shared with both the Canadian and U.S. Loeys-Dietz Foundations for practical considerations around this joint event. Review our privacy policies: LDSF Canada and LDSF (U.S.)\n\n\n\n\nRegister ( https://events.marfan.org/en/i0HMOL6/5a3qRf7pesD )\n\n
URL:https://marfan.org/calendar/peoples-perspectives-living-with-loeys-dietz-syndrome/
CATEGORIES:Webinar
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://marfan.org/wp-content/uploads/2026/02/Peoples-Perspectives-Living-with-Loeys-Dietz-Syndrome-Email-Header-1.png
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