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X-ORIGINAL-URL:https://marfan.org/
X-WR-CALNAME:Marfan Foundation
X-WR-CALDESC:Know. Connect. Thrive.
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BEGIN:VEVENT
CLASS:PUBLIC
UID:MEC-87fff7865acbd081aa2570994204bbcc@marfan.org
DTSTART:20260516T114500Z
DTEND:20260516T190000Z
DTSTAMP:20260331T225400Z
CREATED:20260331
LAST-MODIFIED:20260331
PRIORITY:5
SEQUENCE:2
TRANSP:OPAQUE
SUMMARY:NYC/Tristate Symposium: Living Better with Marfan, Loeys-Dietz, VEDS, & Stickler
DESCRIPTION:\nThe Marfan Foundation and Weill Cornell Medicine present an educational opportunity for individuals and families living with Marfan, Loeys-Dietz, VEDS, Stickler, and related conditions.\n\n\n\nThis informative and engaging event will provide the latest updates on treatment, medical management, and quality-of-life issues, and includes opportunities to network with the medical experts and connect with others in the area who are also living with these conditions.\n\n\n\nA light breakfast, networking break, and a Creating Connections lunch will be provided. \n\n\n\n$25 registration fee, includes breakfast and lunch\n\n\n\nIf the registration fee is an obstacle, please contact Andrea Friedman at afriedman@marfan.org.\n\n\n\nMedical students can attend at no cost. Contact Andrea at the email address above.\n\n\n\n\nRegister ( https://events.marfan.org/en/i0HMOL6/nyctristate-symposium-living-better-with-marfan-loeys-dietz-veds-and-stickler-5a3qRf8HDM1/overview )\n\n
URL:https://marfan.org/calendar/nyc-tristate-symposium-living-better-with-marfan-loeys-dietz-veds-stickler/
CATEGORIES:Symposium
LOCATION:1305 York Ave, New York, NY 10065
ATTACH;FMTTYPE=image/png:https://marfan.org/wp-content/uploads/2026/03/NYC-Symposium-REG-820x410-1.png
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