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METHOD:PUBLISH
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X-ORIGINAL-URL:https://marfan.org/
X-WR-CALNAME:Marfan Foundation
X-WR-CALDESC:Know. Connect. Thrive.
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-PUBLISHED-TTL:PT1H
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BEGIN:VEVENT
CLASS:PUBLIC
UID:MEC-1c23e4b702ac1ca72c7bc88f535fae8f@marfan.org
DTSTART:20261010T120000Z
DTEND:20261010T203000Z
DTSTAMP:20260409T141800Z
CREATED:20260409
LAST-MODIFIED:20260430
PRIORITY:5
SEQUENCE:8
TRANSP:OPAQUE
SUMMARY:London Symposium: Living Better with Marfan, Loeys-Dietz, VEDS, and Stickler
DESCRIPTION:\nPlease join us for our Second International Symposium/London: Living Better with Marfan, Loeys-Dietz, VEDS and Stickler. The presentations, which will feature medical experts from the UK and from around the world, will be geared to individuals and families living with these conditions. Attendees have the opportunity to ask questions of the experts. They will also be able to network with the experts and with other people who are on the same medical journey. Breakfast will be available, and we will also have a Creating Connections lunch. General presentations will be applicable to Marfan, LDS, VEDS, and Stickler, while we will also offer breakout sessions that focus on each of the conditions. Registration is free but required.\n\n\n\nThe Brompton Fountain is offering onsite activities during the symposium hours for children ages 5-12. If you would like to sign up for your child/children, please contact Trudy Nickels at trudyn@thebromptonfountain.org.uk.\n\n\n\nChildcare services will be provided and managed by the Brompton Fountain. The Marfan Foundation is not responsible for the supervision, care, or safety of children during the event.\n\n\n\nThe Second International Symposium/London: Living Better with Marfan, Loeys-Dietz, and VEDS is brought to you by The Marfan Foundation, Marfan Trust UK, The Aortic Dissection Charitable Trust, Stickler Syndrome UK, and Annabelle’s Challenge.\n\n\n\n\nRegister ( https://events.marfan.org/en/i0HMOL6/london-symposium-living-better-with-marfan-loeys-dietz-veds-and-stickler-5a3qRf7oJ53/overview )\n\n
URL:https://marfan.org/calendar/london-symposium-living-better-with-marfan-loeys-dietz-veds-and-stickler/
CATEGORIES:International,Symposium
LOCATION:9-13 Bloomsbury St, WC1B 3QD, London, UK
ATTACH;FMTTYPE=image/png:https://marfan.org/wp-content/uploads/2026/03/LondonSymposium-2026_header_rev.png
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