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X-ORIGINAL-URL:https://marfan.org/
X-WR-CALNAME:Marfan Foundation
X-WR-CALDESC:Know. Connect. Thrive.
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BEGIN:VEVENT
CLASS:PUBLIC
UID:MEC-dd17e652cd2a08fdb8bf7f68e2ad3814@marfan.org
DTSTART:20210626T160000Z
DTEND:20210626T190000Z
DTSTAMP:20210110T020600Z
CREATED:20210109
LAST-MODIFIED:20210222
PRIORITY:5
SEQUENCE:0
TRANSP:OPAQUE
SUMMARY:2021 Central New York Walk for Victory
DESCRIPTION:Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan syndrome, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together. The walks are non-athletic, family-oriented events that focus on fundraising and fun.\nAfter a year that took the majority of our Walks virtual, we are back stronger and with even more pride. Our goal for 2021 is to raise $900,000 to continue supporting life-saving and life-enhancing programs for our families, kids, teens, and adults who live with genetic aortic conditions.\nAs we approach our 40th anniversary year, we are proud to be the premier organization in the world that provides resources, educational programs, support services, and research on these potentially life-threatening conditions.\nHelp make a difference and create community connections by registering for the Walk for Victory!\n
URL:https://give.marfan.org/event/2021-central-new-york-walk-for-victory/e303472
ORGANIZER;CN=Kara Burke:MAILTO:kburke@marfan.org
CATEGORIES:Walk for Victory
LOCATION:16799 Little York Lake Road, Homer, NY 13077
ATTACH;FMTTYPE=image/jpeg:https://marfan.org/wp-content/uploads/2020/12/Marfan_Placeholder-Image.jpg
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