Join the Walk for Victory movement! 

Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions. 

Together, we raise awareness and help families get the best medical care from leading experts. 

Together, we help fund events and programs that improve the lives of our community: support groups, symposiums, conferences, Camp Victory for kids, life-saving research, and more! 

YOU GET IT…

Let’s do it TOGETHER!

Join the Walk for Victory movement! 

Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions. 

Together, we raise awareness and help families get the best medical care from leading experts. 

Together, we help fund events and programs that improve the lives of our community: support groups, symposiums, conferences, Camp Victory for kids, life-saving research, and more! 

YOU GET IT…

Let’s do it TOGETHER!

Join the Walk for Victory movement! 

Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions. 

Together, we raise awareness and help families get the best medical care from leading experts. 

Together, we help fund events and programs that improve the lives of our community: support groups, symposiums, conferences, Camp Victory for kids, life-saving research, and more! 

YOU GET IT…

Let’s do it TOGETHER!

We are delighted to present A Lunch with Heart Palm Beach, a sophisticated new addition to The Marfan Foundation’s signature events.

Join us at Salute Ristorante Palm Beach on Wednesday, March 18, 2026, from 11:30 AM to 2:30 PM for cocktails, a seated lunch, and an exclusive pop-up boutique from Fivestory Palm Beach.

We are honored that Karen Murray, whose leadership created our most longstanding and successful gala, Heartworks NYC, will serve as Event Chair for this special luncheon.

This elegant gathering brings our community together to support individuals and families affected by Marfan syndrome and related genetic aortic conditions.

Sponsorships and tickets are available below — select the level that allows you to celebrate, support, and make a difference while enjoying a truly unforgettable experience.

Cheers!

For the first time, the Loeys-Dietz Syndrome Foundation Canada and the Loeys-Dietz Syndrome Foundation – a division of the Marfan Foundation – are joining forces to bring you real talk about LDS from those with lived experience. Join four community members – two from the United States and two from Canada – for this dynamic moderated discussion. Registration is free but required. Your advance questions to brandcomms@marfan.org are most welcome!

Please note: registrant information will be shared with both the Canadian and U.S. Loeys-Dietz Foundations for practical considerations around this joint event. Review our privacy policies: LDSF Canada and LDSF (U.S.)

A variant of uncertain significance (VUS) is a common genetic test result, but one that often raises more questions than answers.

In this webinar, Bart Loeys, MD, PhD, from the Center of Medical Genetics Antwerp and a member of the Marfan Foundation’s professional advisory board, will explain what a VUS is, why these results occur, and how they are interpreted for conditions such as Marfan syndrome, Loeys-Dietz syndrome, VEDS, and Stickler syndrome.

Attendees will learn how VUS results are monitored over time, when (and if) they may be reclassified, and how healthcare professionals use this information to guide care and next steps.

Registration is free but required.

The Marfan Foundation and Norton Children’s Heart Institute present an educational opportunity for individuals and families living with Marfan, Loeys-Dietz, VEDS, and related conditions. This informative and engaging event will provide the latest updates on treatment and quality of life issues, and includes opportunities to network with the speakers and connect with other people in the area who are also living with these conditions.

A light breakfast, networking break, and lunch will be provided. There is no fee to attend, but registration is required.

Children

There will be a program with activities for children ages 5-12. For more information and to register your child/children, please contact Lori McCormick, lori.mccormick@nortonhealthcare.org.

Hotel Accommodations

Symposium registrants are eligible for a discounted rate at the Cambria Hotel, 120 South Floyd Street. Follow this link to book your room at the discounted rate.

Transportation

If transportation is an issue for you, please contact Eileen at enovins@marfan.org by February 25. Please include your name, the number of people, and where you live. We may be able to help.

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Join the Walk for Victory movement! 

Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions. 

Together, we raise awareness and help families get the best medical care from leading experts. 

Together, we help fund events and programs that make life better for our community: support groups, symposiums, conferences, Camp Victory for kids, life-saving research, and more! 

YOU GET IT…

Let’s do it TOGETHER!