Our annual conference offers opportunities for people of all ages to learn about Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions from experts in the field, network with others on the same medical journey, and make life-long friends.
Our full-day regional educational symposiums bring our conference experience to different regions of the country with medical presentations and opportunities to connect with others in the community of people with Marfan, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions.
The Marfan Virtual Friendly Connection Program gives individuals an opportunity to connect with another person who is on a similar journey with Marfan syndrome.
Virtual Support Groups
Virtual support groups meet regularly via zoom and focus on specific issues that are of concern to the community.
The Foundation holds events of all types in various locations throughout the country and online.
The Foundation provides family camps and kids camps to enable children with Marfan, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions to experience camp in an environment that is safe for them.