How is Marfan Syndrome Managed?
In general, you can expect some things you need to think about every day, such as medications and limitations on physical activity. Then, there are routine doctor appointments, which may be yearly or more frequent, as well as other evaluations to make sure that your Marfan features are not worsening. Sometimes, as features progress, your doctor will recommend surgery to prevent or fix a problem. In some cases, you will have time to plan for an operation; in other cases, immediate surgery may be needed.
Understanding how Marfan syndrome features are treated will help you in your medical journey. We encourage you to learn as much as you can about how the recommended management for Marfan syndrome so you can be prepared at every step of the way. You can always contact us with your questions, but remember that your personal doctor knows your situation best.
Learn about living with Marfan syndrome on a daily basis, surgeries that you might need, and possible emergency situations.
Living Well With Marfan Syndrome
From a very young age, I understood that I was not like other kids. I knew that I had eyes that didn’t see very well and lungs that didn’t breathe very well.