Celebrating 45 Years of the Marfan Foundation: Heartworks NYC 2026
Honoring Heart, Hope, and Progress The 26th Annual Heartworks fundraising gala in New York...
News from
The Marfan Foundation
Beyond the Aorta: Dissections Throughout the Body
When people hear the words “dissection,” they often think of the aorta. It’s the...
A World Community Comes Together: Marfan Foundation 2026 Global Virtual Conference
The Marfan Foundation’s 2026 Global Virtual Conference connected individuals and...
A New Era in Loeys-Dietz Syndrome: Personalized Care for a Complex Condition
More than two decades after Loeys-Dietz syndrome (LDS) was first identified, an updated...
Rosemarie Nania: VEDS advocate, and community “Hero with a Heart”
How does Roe Nania feel about being named a ‘Hero with a Heart’ as part of the Marfan...
Marfan and Loeys-Dietz Awareness Months Reach Nearly 1.2 Million People with Life-Saving Awareness, Raise Essential Funds
The results are in: during Marfan and Loeys-Dietz Awareness Months 2026, the...
Team Victory Goes the Distance at the Paris Marathon
This spring, in the heart of Paris, twelve women from across the U.S. came together...
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