Rosemarie Nania: VEDS advocate, and community “Hero with a Heart”
How does Roe Nania feel about being named a ‘Hero with a Heart’ as part of the Marfan...
Know. Connect. Thrive.
How does Roe Nania feel about being named a ‘Hero with a Heart’ as part of the Marfan...
Best Companies Group has named the Marfan Foundation a recipient of an inaugural 2025 Best...
The Marfan Foundation was recently named 33 of only 50 non-profits chosen across the...
Thanks to the heartfelt and diverse ways in which our community members shared their everyday...
The Marfan Foundation has granted its second Everest Award to a team of researchers led by Julie...
A huge thank you to everyone who submitted entries to our 2024 Marfan Awareness Month t-shirt...
Thanks to the generosity of our supporters, the Foundation awarded five new research grants. These...