Marfan Awareness Month 2024 Wins PR Daily Awards for Social Media & Engagement, Innovation Mention
Thanks to the heartfelt and diverse ways in which our community members shared their everyday...
Category: Announcements
The Marfan Foundation announces alignment with global Think Aorta campaign to amplify key life-saving messages, starting with Aortic Dissection Awareness Week 2024 (9/19 – 9/26)
Aims to save more lives through rapid ID of symptoms and urgent CT scan diagnoses The...
Foundation presents first-ever London Symposium: Living Better with Marfan, Loeys-Dietz, & VEDS
Co-presented by our friends from Annabelle's Challenge, Marfan Trust, The Aortic Dissection...
TromsoAorta 2024 Convenes Scientists, Sparks Hope
This week, leading experts from around the world came together for a joint meeting of the GenTAC...
Foundation Volunteers Convene Expert Group that Releases First-Ever AHA Pediatric Aortopathy Scientific Statement
August 12th, 2024, became a historic day for the genetic aortic and vascular conditions...
Welcome Nurse Stephanie
The Marfan Foundation is pleased to welcome Stephanie Amdur-Clark, our new Help and Resource...
StuffThatWorks and The Marfan Foundation to Engage in Pilot Program
Joint efforts will form best practices for non-profit health organizations to leverage patient...
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