The Jonathan Larson Project Comes to the Orpheum Theater, NYC
The Jonathan Larson Project is a new musical that celebrates the dozens of unheard songs,...
Category: Announcements
“Together, We Are Stronger”: Foundation & Marfan Europe Network Align for Awareness
"Together, we are stronger!" Marfan Europe Network (M.E.N.) and Contactgroep Marfan...
Recent Symposiums Deepen Connections & Knowledge
Three symposiums were held this autumn geared toward helping community members connect with one...
Connect With Community Your Way
The Foundation's schedule of events during fall and early winter offers so many chances to connect...
Camp Victory 2024 Brings Smiles
Six years ago, the Foundation began offering Camp Victory to provide a fun, safe environment where...
Marfan Awareness Month 2024 Wins PR Daily Awards for Social Media & Engagement, Innovation Mention
Thanks to the heartfelt and diverse ways in which our community members shared their everyday...
The Marfan Foundation announces alignment with global Think Aorta campaign to amplify key life-saving messages, starting with Aortic Dissection Awareness Week 2024 (9/19 – 9/26)
Aims to save more lives through rapid ID of symptoms and urgent CT scan diagnoses The...
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