“Everyone there just gets it.”
That’s the number thing we hear from our community members after they take part in a Walk for Victory event.
We’re happy to share that the 2026-2027 list of local walk registration links is live (while a few dates are TBD, you can still sign up to take part right away). Visit marfan.org/walk
Walk for Victory is non-competitive community-building, fundraising event in support of our mission: the Marfan Foundation drives research, education and support – and builds community – to improve outcomes, save lives and empower all people to thrive who are living with Marfan, Loeys-Dietz, Vascular Ehlers-Danlos syndromes, and related genetic aortic and vascular conditions.
Big hint: Walk for Victory isn’t about walking! Picture a community picnic where you can make new friends, reconnect with people you care about, and informally meet and chat with experts. There’s something for everyone at Walk for Victory: face-painting, a DJ, lunch, a tie-dye station and more.
Most of all, Walk for Victory gives you the chance to be reminded: you are not alone. Your Marfan Foundation Family is here — waiting to support you every step of the way so that you can Know. Connect. Thrive.
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.