Connected and Not Alone
I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...
I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...
As a teen with a connective tissue condition, building relationships with others who “get” you...
A Marfan Awareness Month Blog Photo: In January, Christopher was presented with a...
Chronically ill and disabled individuals utilize the internet to find community and spread...
Awareness. In the Marfan world, this is one word with infinite meanings and feelings attached....
When you have a lifelong condition like Marfan syndrome, your daily experience looks different...
My story about Marfan syndrome mostly takes a back seat to my husband's. He's the one with Marfan,...