The Cruz Family
Now that I see things more clearly about my son’s condition, I can tell you our story. My...
Blog Category: Community
Miracles Run In My Family
My father, my brother, and I each had aortic root and valve replacements at 26 years old. Anyone...
Let’s Just Get Checked Out
I'd actually heard about Marfan Syndrome before my dissection. It was mentioned on a TV program...
Running with Purpose: Jenny Braverman
Running this marathon on behalf of my family and others affected by Marfan Syndrome and related...
In Memory of Chris Heaney
This week, we sadly bid farewell to a true pillar of our Marfan community, Christopher Heaney. In...
Connected and Not Alone
I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...
A Teen’s Perspective: Finding a Community at Conference
As a teen with a connective tissue condition, building relationships with others who “get” you...
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Together, We Can Know the Signs
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Together, We Can Know the Signs
and Fight for Victory