English
Español
Italiano
Deutsch
Français
Nederlands
Svenska
Português
Suomi
简体中文
日本語
हिन्दी
An Ode to the Spoon Theory and Online Communities
Chronically ill and disabled individuals utilize the internet to find community and spread...
Blog Category: Community
We See Your Impact
Awareness. In the Marfan world, this is one word with infinite meanings and feelings attached....
Mental Health with Marfan Syndrome (in a Post-2020 World)
When you have a lifelong condition like Marfan syndrome, your daily experience looks different...
Carrying His Heart in Mine
My story about Marfan syndrome mostly takes a back seat to my husband's. He's the one with Marfan,...
An Eagle Scout’s Generosity in Memory of a Friend
Jonathan Brink, an 18-year-old who attends Branham High School in California and is a Boy Scout in...
Three Keys to a Positive Outcome
Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...
Power Couple Surges Through Connective Tissue Condition to Help Others
On a crisp day in 2010, Pam Moultrup entered the hospital. She checked in at the reception desk...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We are Fighting for Victory
