Meet Stephanie: Nurse, Mom, and Help & Resource Center Advocate
Thrive Connectors partner with community members every day to help more people Know. Connect....
Blog Category: Community
A Legacy of Gratitude
Every August, Make-A-Will Month serves as an important reminder that creating an estate plan isn't...
Essential Care: Mental Health and Life with VEDS
“The mental health burden of living with VEDS is profound,” says Karen MountainJohnson, a...
Small Events—Big Impact
It was the little touches that made the June 20 Well Kirtland Golf Fundraiser for the VEDS...
Family Creates Tournament to Raise Awareness Following Loss of Husband and Son to Loeys-Dietz Syndrome
For father and son Greg and Trent Hall, cornhole was a family...
Ciccariello Family Statement on the Passing of Dr. Reed Pyeritz
The late Priscilla Ciccariello was the original "Marfan Mom" and her mission to protect her family...
From Lived Experience to Healthcare Professional
How community members are shaping the future of care. For many in the Marfan Foundation...
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