An Ode to the Spoon Theory and Online Communities
Chronically ill and disabled individuals utilize the internet to find community and spread...
Chronically ill and disabled individuals utilize the internet to find community and spread...
Awareness. In the Marfan world, this is one word with infinite meanings and feelings attached....
When you have a lifelong condition like Marfan syndrome, your daily experience looks different...
My story about Marfan syndrome mostly takes a back seat to my husband's. He's the one with Marfan,...
Jonathan Brink, an 18-year-old who attends Branham High School in California and is a Boy Scout in...
Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...
On a crisp day in 2010, Pam Moultrup entered the hospital. She checked in at the reception desk...