Ciccariello Family Statement on the Passing of Dr. Reed Pyeritz
The late Priscilla Ciccariello was the original "Marfan Mom" and her mission to protect her family...
Blog Category: Community
From Lived Experience to Healthcare Professional
How community members are shaping the future of care. For many in the Marfan Foundation...
How a Marfan Foundation Conference Led to a Cross-Country Forever Friendship: Jennie & Danielle’s Story
Jennie Aucoin traveled to the Marfan Foundation Conference in Atlanta in July of...
Ready, Set, Transition: Helping Teens Step into Adult Care
For families navigating life with a genetic aortic and vascular condition, the move from pediatric...
After 10 Operations, Teenager Olivia Nguyen Pays It Forward by Volunteering and Raising Awareness of Loeys-Dietz Syndrome
Hoan and Danette Nguyen remember being confused when their daughter, Olivia, “suddenly...
Thank You VEDS Community: Annual Houston VEDS Party & Walk for Victory
A gratitude-filled reflection from VEDS Movement Director Ryan Rodarmer, MS Ryan Rodarmer,...
Healing Mentally and Physically After Aortic Dissection
During Mental Health Awareness Month, we recognize that the impact of a genetic aortic or...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
