Blog Category: Know the Signs

Advocacy, Conference, Diagnosis, Know the Signs April 6, 2023April 24, 2023

A Trip to Conference Leads to a Marfan Diagnosis for 30+ Family Members

Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...

Advocacy, Awareness, Education, Know the Signs, Volunteer February 1, 2022January 31, 2022

Awareness is Never Losing Someone Unexpectedly to Marfan Syndrome

Helping Others Helps Me I share because I care. It sounds simple, but it is so true. There are...

Advocacy, Awareness, Community, Know the Signs December 3, 2021December 3, 2021

An Eagle Scout’s Generosity in Memory of a Friend

Jonathan Brink, an 18-year-old who attends Branham High School in California and is a Boy Scout in...

Awareness, Know the Signs, Quality of Life February 19, 2021February 24, 2021

Broken Bones, But Not Broken

I was born the day before my due date and I was perfectly healthy. I was 9lbs 3oz and almost 22in...

Awareness, Diagnosis, Know the Signs February 15, 2019February 24, 2021

Finding Marfan: A Breakthrough in Mental Health

This past year I turned the big 4-0. Forty years…my gosh, it goes by fast. But if you think...

Education, Know the Signs August 9, 2018February 24, 2021

A Workplace Issue You Probably Didn’t Anticipate

It never gets easier. Each time I have to tell someone new about my husband's condition, it seems...

Community, Know the Signs, Quality of Life, Research September 29, 2017February 24, 2021

Physical Therapy: Myths and Facts

People everywhere are experiencing the transformative effect physical therapy can have on their...

Together, We are Fighting for Victory

View all Divisions

View Our science and treatment arm

Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.

Donate Now

Together, We are Fighting for Victory

View all Divisions

View Our science and treatment arm

Blog Category: Know the Signs

A Trip to Conference Leads to a Marfan Diagnosis for 30+ Family Members

Awareness is Never Losing Someone Unexpectedly to Marfan Syndrome

An Eagle Scout’s Generosity in Memory of a Friend

Broken Bones, But Not Broken

Finding Marfan: A Breakthrough in Mental Health

A Workplace Issue You Probably Didn’t Anticipate

Physical Therapy: Myths and Facts

Have a question? We can help.

Together, We are Fighting for Victory

Know the signs. Fight for victory.

Together, We are Fighting for Victory

Join us in the fight for victory over genetic aortic and vascular conditions. Sign up to get the latest news and updates.

Stay Connected on Social Media

Have a question? We can help.

Together, We are Fighting for Victory

Know the signs. Fight for victory.

Together, We are Fighting for Victory