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Awareness is Never Losing Someone Unexpectedly to Marfan Syndrome
Helping Others Helps Me I share because I care. It sounds simple, but it is so true. There are...
Blog Category: Know the Signs
An Eagle Scout’s Generosity in Memory of a Friend
Jonathan Brink, an 18-year-old who attends Branham High School in California and is a Boy Scout in...
Broken Bones, But Not Broken
I was born the day before my due date and I was perfectly healthy. I was 9lbs 3oz and almost 22in...
Finding Marfan: A Breakthrough in Mental Health
This past year I turned the big 4-0. Forty years…my gosh, it goes by fast. But if you think...
A Workplace Issue You Probably Didn’t Anticipate
It never gets easier. Each time I have to tell someone new about my husband's condition, it seems...
Physical Therapy: Myths and Facts
People everywhere are experiencing the transformative effect physical therapy can have on their...
Sinclaire’s Story from the Heart
Most people affected by Marfan syndrome experience a life-changing moment when they or a loved one...
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