The Cruz Family
Now that I see things more clearly about my son’s condition, I can tell you our story. My...
Blog Category: Know the Signs
Let’s Just Get Checked Out
I'd actually heard about Marfan Syndrome before my dissection. It was mentioned on a TV program...
Joaquin’s Story: Aortic Disease Awareness
"My whole world changed in an instant..." On July 31, 2020, my whole world changed in an...
A Trip to Conference Leads to a Marfan Diagnosis for 30+ Family Members
Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...
Awareness is Never Losing Someone Unexpectedly to Marfan Syndrome
Helping Others Helps Me I share because I care. It sounds simple, but it is so true. There are...
An Eagle Scout’s Generosity in Memory of a Friend
Jonathan Brink, an 18-year-old who attends Branham High School in California and is a Boy Scout in...
Broken Bones, But Not Broken
I was born the day before my due date and I was perfectly healthy. I was 9lbs 3oz and almost 22in...
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Together, We Can Know the Signs
and Fight for Victory
Together, We Can Know the Signs
and Fight for Victory