Blog Category: Know the Signs

Awareness, Know the Signs, Quality of Life February 19, 2021February 24, 2021

Broken Bones, But Not Broken

I was born the day before my due date and I was perfectly healthy. I was 9lbs 3oz and almost 22in...

Awareness, Diagnosis, Know the Signs February 15, 2019February 24, 2021

Finding Marfan: A Breakthrough in Mental Health

This past year I turned the big 4-0. Forty years…my gosh, it goes by fast. But if you think...

Education, Know the Signs August 9, 2018February 24, 2021

A Workplace Issue You Probably Didn’t Anticipate

It never gets easier. Each time I have to tell someone new about my husband's condition, it seems...

Community, Know the Signs, Quality of Life, Research September 29, 2017February 24, 2021

Physical Therapy: Myths and Facts

People everywhere are experiencing the transformative effect physical therapy can have on their...

Community, Diagnosis, Know the Signs, Quality of Life September 8, 2016February 24, 2021

Sinclaire’s Story from the Heart

Most people affected by Marfan syndrome experience a life-changing moment when they or a loved one...

Diagnosis, Know the Signs, Quality of Life August 16, 2016February 24, 2021

What Fulfills You?

When you think about your life as an able-bodied person, what fulfills you? Does going to work and...

Community, Know the Signs, Quality of Life July 20, 2016February 24, 2021

Linh Ngo: My Marfan Story

Part 1 of Linh Ngo’s Marfan story is reprinted here with permission from the author. You can...

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