Awareness Archives - Marfan Foundation

“And There My Life Began”: Trip of a Lifetime Leads to Conference, Loeys-Dietz Diagnosis

After a lifetime of medical issues that were at first unexplainable, then eventually labeled...

Awareness September 22, 2024September 24, 2024

40-year-old Derrick Werner was doing his job as a lineman. He was in the bucket working on a...

Awareness, Know the Signs September 18, 2024October 15, 2024

CAUTION: This story focuses on a detailed account of fatal childhood aortic dissection; the...

Awareness, Diagnosis August 30, 2024September 3, 2024

“All of a sudden, I just had a crushing chest pain.” David Noe, who had spent large...

Advocacy, Awareness, Community June 26, 2024July 31, 2024

Kaitlyn was a vibrant, seemingly healthy 14-year-old girl who enjoyed musical theater and...

Awareness, Diagnosis, Education February 9, 2024July 31, 2024

I was diagnosed with Marfan Syndrome at birth. My father had a spontaneous mutation, and he passed...

Awareness, Community, Quality of Life, Surgery December 19, 2023December 20, 2023

Guest writer Mazzy Sass is a junior at Schreiber High School in Port Washington, NY (also the...