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Connected and Not Alone
I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...
Blog Category: Awareness
Passion and Outreach Lead to Marfan Awareness
A Marfan Awareness Month Blog Photo: In January, Christopher was presented with a...
Mental Health: Sharing Leads to Support and Hope
What are the mental health issues that people with Marfan syndrome and related connective tissue...
Dr. Douglas Richter: Insights from a Medical Expert with Marfan Syndrome
A Marfan Awareness Month Blog Marfan Awareness Month is a time to raise awareness of Marfan...
Pamela Cummings: Advocacy Though Online Action
A Marfan Awareness Month Blog Q&A There are many ways to spread Marfan awareness and...
An Ode to the Spoon Theory and Online Communities
Chronically ill and disabled individuals utilize the internet to find community and spread...
We See Your Impact
Awareness. In the Marfan world, this is one word with infinite meanings and feelings attached....
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Together, We are Fighting for Victory
Together, We are Fighting for Victory
