The Cruz Family
Now that I see things more clearly about my son’s condition, I can tell you our story. My...
Blog Category: Awareness
Miracles Run In My Family
My father, my brother, and I each had aortic root and valve replacements at 26 years old. Anyone...
Let’s Just Get Checked Out
I'd actually heard about Marfan Syndrome before my dissection. It was mentioned on a TV program...
Joaquin’s Story: Aortic Disease Awareness
"My whole world changed in an instant..." On July 31, 2020, my whole world changed in an...
Connected and Not Alone
I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...
Passion and Outreach Lead to Marfan Awareness
A Marfan Awareness Month Blog Photo: In January, Christopher was presented with a...
Mental Health: Sharing Leads to Support and Hope
What are the mental health issues that people with Marfan syndrome and related connective tissue...
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Together, We Can Know the Signs
and Fight for Victory
Together, We Can Know the Signs
and Fight for Victory