An Ode to the Spoon Theory and Online Communities
Chronically ill and disabled individuals utilize the internet to find community and spread...
Chronically ill and disabled individuals utilize the internet to find community and spread...
Awareness. In the Marfan world, this is one word with infinite meanings and feelings attached....
When you have a lifelong condition like Marfan syndrome, your daily experience looks different...
Marfan Awareness Month is a time to raise awareness of Marfan syndrome among the public and...
Helping Others Helps Me I share because I care. It sounds simple, but it is so true. There are...
My story about Marfan syndrome mostly takes a back seat to my husband's. He's the one with Marfan,...
In 1971, at the young age of two, Amy Grimshaw had a routine appointment with a doctor at the Army...