Why Clinical Trials Matter for the VEDS Community
The VEDS Movement Director Ryan Rodarmer is a genetic counselor and Type A dissection...
Blog Category: Awareness
Leticia’s Pregnancy Story: “I know how to take care of myself…”
Decisions around family planning, pregnancy, and related considerations are very personal. We...
“Marfan just happens to be a part of me…” Andrea’s Story
Andrea Aguiar shares her first-person experiences living with Marfan syndrome in this guest...
Teen Voices: Overcoming Challenges
Being a teen isn’t always easy, and teens with genetic aortic and vascular conditions like...
Provider to Patient: A Nurse’s Journey Through Loeys-Dietz Syndrome Diagnosis & Heart Surgery
When George (Jorge) Carrillo, MSN, RN was diagnosed with Loeys-Dietz syndrome in August 2024,...
Finding Purpose in New Places: Traveling the World Alongside Life with Loeys-Dietz Syndrome
(Advisory: This Story Discusses Aortic Dissection) Throwing Caution to the Wind Moving...
Scan to Save: Growing up with Marfan, being diagnosed with cancer
Community member Andrew Rankins shares his first-person experiences with Marfan and an early-stage...
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