“Knowledge Is Power”: Mother & Daughter Raise VEDS Awareness, Offer Support Together
For Bella Marin and her mom, Frances, Bella's VEDS journey is a road traveled...
Blog Category: Awareness
Why the “V” Matters to Me: Living with VEDS – Vascular Ehlers-Danlos syndrome
"Our experiences matter, our futures matter, and our lives matter..." VEDS Movement...
National Estate Planning Awareness Week: October 19 – 25, 2026
A Gift of Gratitude “I learned so much from the Marfan Foundation. What if it never...
Diagnosed with Stickler Syndrome 18 Years Ago, Marie Law, 63, says: “You Can Live a Full Life.”
Marie Law with her son, David. He is the only one of her five children who has Stickler...
Putting Loeys-Dietz on the Page
Patrick Stapleton’s debut novel honors his sister while raising awareness of the connective...
A Legacy of Gratitude
Every August, Make-A-Will Month serves as an important reminder that creating an estate plan isn't...
Essential Care: Mental Health and Life with VEDS
“The mental health burden of living with VEDS is profound,” says Karen MountainJohnson, a...
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