Diagnosed with Stickler Syndrome 18 Years Ago, Marie Law, 63, says: “You Can Live a Full Life.”
Marie Law with her son, David. He is the only one of her five children who has Stickler...
Blog Category: Awareness
Putting Loeys-Dietz on the Page
Patrick Stapleton’s debut novel honors his sister while raising awareness of the connective...
A Legacy of Gratitude
Every August, Make-A-Will Month serves as an important reminder that creating an estate plan isn't...
Essential Care: Mental Health and Life with VEDS
“The mental health burden of living with VEDS is profound,” says Karen MountainJohnson, a...
Small Events—Big Impact
It was the little touches that made the June 20 Well Kirtland Golf Fundraiser for the VEDS...
Family Creates Tournament to Raise Awareness Following Loss of Husband and Son to Loeys-Dietz Syndrome
For father and son Greg and Trent Hall, cornhole was a family...
After 10 Operations, Teenager Olivia Nguyen Pays It Forward by Volunteering and Raising Awareness of Loeys-Dietz Syndrome
Hoan and Danette Nguyen remember being confused when their daughter, Olivia, “suddenly...
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