Know the Signs, Fight for Victory

Attend an Event

We hold many fundraising events from coast to coast throughout the year to raise awareness of Marfan syndrome and related conditions and to raise critical funds to support our work. Our events include formal Heartworks Galas, family-friendly Walks for Victory, online cocktail hours, and local events arranged by volunteer leaders. Each and every event is important and helps us further our mission.

Our educational events include our four-day conference and various regional symposia. These bring together individuals, families, and medical experts for information and support for the Marfan, Loeys-Dietz, VEDS, and related conditions community.

Upcoming Events

We hold many events from coast-to-coast throughout the year to raise awareness of Marfan, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions, and to raise critical funds to support our work.

Monthly

May 2022

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HeartWorks Gala

Conference

The Marfan Foundation hosts a conference which provides people living with Marfan syndrome, VEDS, Loeys-Dietz and related conditions, and their families, an opportunity to learn about these conditions from the country’s medical experts, hear about the latest research, and connect with other people who are on the same medical journey.