Know the Signs, Fight for Victory

Attend an Event

We hold many fundraising events from coast to coast throughout the year to raise awareness of Marfan syndrome and related conditions and to raise critical funds to support our work. Our events include formal Heartworks Galas, family-friendly Walks for Victory, online cocktail hours, and local events arranged by volunteer leaders. Each and every event is important and helps us further our mission.

Our educational events each year include our annual four-day conference and various regional symposia. These bring together individuals, families, and medical experts for information and support for the Marfan, Loeys-Dietz, VEDS, and related conditions community.

Upcoming Events

We hold many events from coast-to-coast throughout the year to raise awareness of Marfan, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions, and to raise critical funds to support our work.

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Special Events

HeartWorks Gala

50th Annual NYC Marathon

It’s official! On November 7, 2021, 33,000 people will run the 50th Annual NYC Marathon, and we are excited to announce that The Marfan Foundation will have a team once again! Please contact Alyssa Aiello at aaiello@marfan.org with any questions. Please note, it is recommended that people with Marfan and related conditions should not participate in competitive or contact sports.

Annual Conference

Every year, we hold an Annual Conference which provides people living with Marfan syndrome and related conditions, and their families, an opportunity to learn about these conditions from the country’s medical experts, hear about the latest research, and connect with other people who are on the same medical journey.