Attend an Event
The Marfan Foundation hosts many events throughout the year to raise awareness of Marfan syndrome and related conditions, and to raise critical funds to support our mission. Events include formal HeartWorks Galas, family-friendly Walks for Victory events, cocktail hours, and local events arranged by volunteer leaders.
Educational events include our four-day conference and various regional symposia. These opportunities bring together individuals, families, and medical experts for information and support for the Marfan, Loeys-Dietz, VEDS, and related conditions community.
HeartWorks Gala
Founded 25 years ago by former Board Chair, Karen Murray, the first HeartWorks was a small event held at a fashion showroom in New York City. Since then, HeartWorks has become a star-studded event in some of the most exquisite locations in New York and expanding to other cities, including St. Louis, Houston, and Chicago.
The galas provide an opportunity to recognize members of our community. We have honored many of the world’s leading medical experts on Marfan, Loeys-Dietz, and VEDS, business leaders, and other volunteers who have made significant contributions to advance the Foundation’s mission. Each event also provides an intimate look into the lives of those affected, raising awareness and creating impact.
Through corporate support and community leadership and participation, HeartWorks has raised more than $15 million since its inception. This funding is critical to the Foundation’s programs and services that provide education, patient support, and research.
Interested in supporting a special event with a sponsorship, donation, or auction item?
Please contact Kara Burke at kburke@marfan.org or Alyssa Aiello at aaiello@marfan.org.
Voices for Victory
HeartWorks New York City
Founded in 1998 by former Board chair Karen Murray, HeartWorks New York City is our signature special event that has featured incredible performances from Broadway legends, honored world-class medical experts, and raised critical funds to support our mission. This is a one-of-a-kind event you don’t want to miss!
25th Anniversary HeartWorks NYC
HeartWorks St. Louis
HeartWorks St. Louis was established in 2009 by Dr. Alan Braverman and his wife, Rebecca. A member of the Foundation’s Professional Advisory Board and Board of Directors, Dr. Braverman is a world-renowned medical expert on Marfan syndrome and related conditions. Join the St. Louis community as we come together to further advance the life-saving work of The Marfan Foundation.
HeartWorks Houston
Established in 2021 by Dr. Joseph Coselli and his wife, Kelly, the Houston HeartWorks gala is a true partnership supported by volunteers and many hospitals in the Houston area. Join us as we come together to honor deserving individuals who have made significant contributions to our community, enjoy live music and dancing, and participate in our exciting live and silent auctions.
HeartWorks Houston
HeartWorks Chicago
HeartWorks Chicago held its inaugural event in 2022, and over our first two years, we have had tremendous nights – with sold-out rooms that enjoyed amazing live bands, fun live auctions, and incredible fundraising success. Our volunteer leaders have shown their relentless commitment to the Foundation’s mission with our hospital partners, Children’s Alliance of Chicagoland, Northwestern Medicine, and Robert & Ann Lurie Children’s Hospital.
HeartWorks Chicago
UnCorked & Evening with Heart
Don’t miss out on wonderful opportunities to get together for a fun evening event while raising funds and awareness for The Marfan Foundation and its divisions.
Uncorked
1 East 60th Street, New York, NY 10022
Evening with Heart Scottsdale
7477 East Doubletree Ranch Road, Scottsdale, AZ 85258
Event News
- Foundation presents first-ever London Symposium: Living Better with Marfan, Loeys-Dietz, & VEDS
Co-presented by our friends from Annabelle’s Challenge, Marfan Trust, The Aortic Dissection Charitable Trust, and Terumo Aortic, our inaugural London… Read more: Foundation presents first-ever London Symposium: Living Better with Marfan, Loeys-Dietz, & VEDS - TromsoAorta 2024 Convenes Scientists, Sparks Hope
This week, leading experts from around the world came together for a joint meeting of the GenTAC Alliance — powered… Read more: TromsoAorta 2024 Convenes Scientists, Sparks Hope - “It Makes Us Part of Something.” Global Virtual Conference Deepens Connections & Knowledge
Marta Dias of Lisbon, Portugal sees the Foundation’s 2024 Global Virtual Conference as a unique chance to find expert advice,… Read more: “It Makes Us Part of Something.” Global Virtual Conference Deepens Connections & Knowledge
Looking for Other Events?
The Marfan Foundation hosts events that provide people living with Marfan syndrome, VEDS, Loeys-Dietz, and related conditions, and their families, opportunities to connect with the community, learn the latest research information, and spread awareness at various locations around the country.
We’d love to see you there! For more information, visit the links below.
Upcoming Events
We hold many events from coast to coast throughout the year to raise awareness of Marfan, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions, and to raise critical funds to support our work.
Events for October
1st
<Rescheduled> Support for Young Adults with Marfan, VEDS, LDS and related conditions
Events for October
2nd
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21st
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24th
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25th
Events for October
26th
Marfan, Loeys-Dietz, & VEDS Symposium 2024: The Latest on Diagnosis & Management
Events for October
27th
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Events for October
30th
Events for October
31st
Events for November
2nd
