
Attend an Event
We hold many fundraising events from coast to coast throughout the year to raise awareness of Marfan syndrome and related conditions and to raise critical funds to support our work. Our events include formal Heartworks Galas, family-friendly Walks for Victory, online cocktail hours, and local events arranged by volunteer leaders. Each and every event is important and helps us further our mission.
Our educational events include our four-day conference and various regional symposia. These bring together individuals, families, and medical experts for information and support for the Marfan, Loeys-Dietz, VEDS, and related conditions community.
Upcoming Events
We hold many events from coast-to-coast throughout the year to raise awareness of Marfan, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions, and to raise critical funds to support our work.
Events for August
3rd
Events for August
5th
Events for August
6th
Events for August
9th

Camp Victory for Kids – Ohio

Coping with Grief and Loss
Events for August
11th

Camp Victory for Kids – Ohio

LDS Connect
Events for August
13th

THE NORTHERN ILLINOIS CHAPTER OF THE MARFAN FOUNDATION POTLUCK PICNIC
Events for August
14th
Events for August
15th

Teens Together: A Night to Chat

Coping with COVID Stress
Events for August
17th
Events for August
20th
Events for August
21st
Events for August
22nd
Events for August
26th
Events for August
27th
Events for August
28th

International Patient Symposium: What’s New in Genetic Aortic and Vascular Conditions
Events for August
30th
Events for August
31st
Special Events


HeartWorks Gala

Conference
The Marfan Foundation hosts a conference which provides people living with Marfan syndrome, VEDS, Loeys-Dietz and related conditions, and their families, an opportunity to learn about these conditions from the country’s medical experts, hear about the latest research, and connect with other people who are on the same medical journey.