If you are a parent or guardian of a child with VEDS, we invite you to join other parents to discuss the challenges of raising a child with this condition. This group will be hosted by Ryan Rodarmer, director of The VEDS Movement.

This group meets on the fourth Wednesday of every month at 8:00 pm Eastern.

* If your child is over 18, please register for the VEDS Parents Of Adult Children Support Group *

*Please note, every member wanting to join this VEDS Connect group should have a child with a genetically confirmed diagnosis of VEDS to attend. We will request that you confirm that you have a child with a VEDS diagnosis before admitting you to this group. We rely on your honesty to keep this a safe space for group attendees. If you do not have a child with a genetically confirmed diagnosis of VEDS, please sign up for the Seeking Diagnosis and Newly Diagnosed group instead.*