The Marfan Foundation is a nonprofit organization that saves and improves lives while creating a community for all individuals with genetic aortic and vascular conditions, including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes.
Together, We are Fighting for Victory
Together, We Can Know the Signs and Fight for Victory
Latest Research and Updates
The Marfan Foundation is the primary source for up-to-date and trustworthy information for patients and family members as well as healthcare providers and researchers. If you or someone you love has Marfan syndrome or a related conditions, we offer easy-to-understand materials to help you on your medical journey.
Stories of Hope
Mental and Physical Recovery from Surgery
This is me y’all. In all my glory. I’m scarred from the belly up. I have been conquering this thing called Marfan syndrome since birth.
The moment in which a child is born is the most miraculous moment of opportunity. In the moment in which a human life enters the world, a million choices are laid out. The whole world is truly this tiny human’s oyster. Though for some…
A reflection from The VEDS Movement as The Marfan Foundation approaches its 40-year anniversary This year, The Marfan Foundation celebrates its 40-year anniversary, while The VEDS Movement begins its second year as a division…
Marfan Connect (50+) Support –
VEDS Partners and Spouses
Lungs Research Webinar
Mid-Atlantic Regional Chat
Teen Game Night
Support for Young Adults with Marfan, VEDS, LDS and related conditions
Midwest Regional Chat
Coping with Grief and Loss