The Marfan Foundation is a nonprofit organization that saves and improves lives while creating a community for all individuals with genetic aortic and vascular conditions, including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes.
Latest Research and Updates
The Marfan Foundation is the primary source for up-to-date and trustworthy information for patients and family members as well as healthcare providers and researchers. If you or someone you love has Marfan syndrome or a related conditions, we offer easy-to-understand materials to help you on your medical journey.
Stories of Hope
Mental and Physical Recovery from Surgery
This is me y’all. In all my glory. I’m scarred from the belly up. I have been conquering this thing called Marfan syndrome since birth.
The moment in which a child is born is the most miraculous moment of opportunity. In the moment in which a human life enters the world, a million choices are laid out. The whole world is truly this tiny human’s oyster. Though for some…
A reflection from The VEDS Movement as The Marfan Foundation approaches its 40-year anniversary This year, The Marfan Foundation celebrates its 40-year anniversary, while The VEDS Movement begins its second year as a division…
The Fairmont Hotel, Chicago
200 N Columbus Dr, Chicago, IL 60601
The Metropolitan Club
1 East 60th Street, New York, NY 10022
Discovery Green Park – Grace Event Lawn
1500 McKinney St. Houston, Texas 77010
Chaparral Park - Central Ramada
5401 N Hayden Rd., Scottsdale, AZ 85250