The Marfan Foundation is a nonprofit organization that saves and improves lives while creating a community for all individuals with genetic aortic and vascular conditions, including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes.
Together, We Can Know the Signs
and Fight for Victory
Latest Research and Updates
The Marfan Foundation is the primary source for up-to-date and trustworthy information for patients and family members as well as healthcare providers and researchers. If you or someone you love has Marfan syndrome or a related conditions, we offer easy-to-understand materials to help you on your medical journey.
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Stories of Hope
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Mental and Physical Recovery from Surgery
This is me y’all. In all my glory. I’m scarred from the belly up. I have been conquering this thing called Marfan syndrome since birth.
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Choices
The moment in which a child is born is the most miraculous moment of opportunity. In the moment in which a human life enters the world, a million choices are laid out. The whole world is truly this tiny human’s oyster. Though for some…
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Stronger Together
A reflection from The VEDS Movement as The Marfan Foundation approaches its 40-year anniversary This year, The Marfan Foundation celebrates its 40-year anniversary, while The VEDS Movement begins its second year as a division…
Upcoming Events
Camp Victory for Families – Georgia
Camp Twin-Lakes
210 S Broad Street, Unit 5, Winder, GA 30680