Claves para una vida plena: el Simposio de Barcelona lleva nuestra misión a la familia de La Fundación Marfan en España
Mónica y su hermana Mercedes sonríen juntas delante de una pantalla con el logotipo de The...
News from
The Marfan Foundation
Keys to a Full Life: Barcelona Symposium Brings Mission to our Marfan Foundation Family in Spain
Marfan Foundation community member Monica (left) with her sister Mercedes. On October 3, 2026,...
Meet the Next Generation of Genetic Aortic & Vascular Condition Researchers
Early-career scientists are bringing their work—and their ideas— to the 2026 Science in Spain...
The Time to Act Is Now: A Joint Call to Prevent the Next Aortic Tragedy
The deaths of U.S. Senator Lindsey Graham, Congressman Doug LaMalfa, and bestselling...
Aortic Dissection Awareness: 30 Years After Rent, Cast Reunion Reignites Jonathan Larson’s Life-Saving Legacy
When 13 of the original 15 Rent cast members reunited on a festival stage in Kingston, NY,...
Eight leading aortic-awareness organizations unite to amplify life-saving stories during Aortic Dissection Awareness Week 2026
Goal: Raising awareness through storytelling, education and collective action For Media...
Meet Monty: New Resource Aims to Help More Teachers Understand Marfan Syndrome in the Classroom
Students living with Marfan syndrome are more than their diagnoses - they are vibrant young...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
