As a result of our long-time commitment, we have turned the tide for Marfan research. We work with world-class scientists who are equally dedicated to our goal of creating a brighter future for people living with Marfan syndrome and related conditions. And, through our research grant program, we have grown the number of researchers studying Marfan syndrome and advancing research that improves diagnosis and treatment for the various body systems affected by Marfan syndrome.

In addition, the research we’ve championed has identified new conditions related to Marfan syndrome, which not only allows for better, more specific diagnoses, but also helps to pinpoint more effective treatments for Marfan syndrome and the related conditions.

To expand the impact of our efforts, we push the government to fund the research that will improve and save lives. Further, we facilitate the sharing of knowledge about Marfan syndrome and related conditions through conferences, symposia, and partnerships with governmental agencies and other health organizations. We continue to push research forward research for both Marfan syndrome and related conditions because advances in fighting Marfan syndrome help us take steps toward victory in related conditions—and vice versa.

Each year, The Marfan Foundation pursues the most innovative research by providing support through our research grant program. Through our research grants and other commitments, we have funded more than $21 million in research since 1986.