A medida que las necesidades de salud de las escuelas han cambiado desde 1902, el papel de la enfermería escolar ha evolucionado para satisfacer esas necesidades cambiantes. La enfermera escolar desempeña un papel de liderazgo importante en la prevención de enfermedades o lesiones, la identificación de problemas médicos a través de programas de detección y […]
El síndrome de Marfan es un trastorno genético potencialmente mortal que causa algunos problemas físicos que pueden interferir con la capacidad de un estudiante para desempeñarse en el aula sin modificaciones. Estas limitaciones físicas hacen que muchos estudiantes que viven con este trastorno se sientan aislados y solos. Esperamos que esta guía permita a los […]
When you’re recovering from surgery or having a pain flare-up, people often ask how they can help. But when you’re not feeling well, it’s hard to know what to say. These worksheets are designed for adults, teens, and kids to communicate the best ways to support them through medical events.
Understanding your genetic test results for conditions like Marfan, Loeys-Dietz, or VEDS can be challenging. Here’s a simple Q&A to help make sense of what your results may mean and what you might consider doing next.
While most people with chronic conditions focus on their physical health, mental health is often ignored. Having a connective tissue condition isn’t easy, so give your mind the TLC it needs.
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Join us in the fight for victory over genetic aortic and vascular conditions and help us create a brighter future for everyone living with these conditions.