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Our Professional Advisory Board has issued an updated statement regarding COVID-19 vaccinations for both adults and children with Marfan syndrome and related conditions. This guidance reflects the latest research and clinical expertise to help individuals and families make informed decisions about vaccination and ongoing health protection.
What are the most common gastrointestinal issues in people with connective tissue conditions? The answer to this question and more can be found in this document from Tony Guerrerio, MD, PhD.
A medida que las necesidades de salud de las escuelas han cambiado desde 1902, el papel de la enfermería escolar ha evolucionado para satisfacer esas necesidades cambiantes. La enfermera escolar desempeña un papel de liderazgo importante en la prevención de enfermedades o lesiones, la identificación de problemas médicos a través de programas de detección y […]
El síndrome de Marfan es un trastorno genético potencialmente mortal que causa algunos problemas físicos que pueden interferir con la capacidad de un estudiante para desempeñarse en el aula sin modificaciones. Estas limitaciones físicas hacen que muchos estudiantes que viven con este trastorno se sientan aislados y solos. Esperamos que esta guía permita a los […]
When you’re recovering from surgery or having a pain flare-up, people often ask how they can help. But when you’re not feeling well, it’s hard to know what to say. These worksheets are designed for adults, teens, and kids to communicate the best ways to support them through medical events.
Understanding your genetic test results for conditions like Marfan, Loeys-Dietz, or VEDS can be challenging. Here’s a simple Q&A to help make sense of what your results may mean and what you might consider doing next.
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