When you’re recovering from surgery or having a pain flare-up, people often ask how they can help. But when you’re not feeling well, it’s hard to know what to say. These worksheets are designed for adults, teens, and kids to communicate the best ways to support them through medical events.
Related Resources
Video Preguntas y Respuestas
Aquí están algunas de las preguntas más frecuentes sobre el síndrome de Marfan y trastornos relacionados con las respuestas proporcionadas por el Dr. Juan Bowen, Mayo Clinic, quien es un experto médico líder en el síndrome de Marfan y trastornos relacionados.
Tags: All , Caregivers, Patients & Families
Teens and Marfan Syndrome
If you were recently diagnosed with Marfan syndrome or if you have known about it for years, there are probably hundreds of thoughts, questions, and concerns rushing through your head. On one hand, there is a whole new world of medical information to learn. On the other hand, there is your life as a teen. […]
Hypermobile Ehlers-Danlos
Hypermobile Ehlers-Danlos is one of six different types of Ehlers-Danlos syndromes, and it is the most common. Hypermobile Ehlers-Danlos is a connective tissue disorder that predominantly affects the skeletal system. It is characterized by loose joints, often associated with chronic (long-term) joint pain. What other names do people use for Hypermobile Ehlers-Danlos? What are the […]
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.