When you’re recovering from surgery or having a pain flare-up, people often ask how they can help. But when you’re not feeling well, it’s hard to know what to say. These worksheets are designed for adults, teens, and kids to communicate the best ways to support them through medical events.
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Die Augen Beim Marfan-Syndrom
Das Marfan-Syndrom und andere verwandte Erkrankungen können verschiedene Veränderungen im Bereich des Auges hervorrufen, wie z. B. verlagerte Linsen und andere Augenprobleme, die die Sicht beeinträchtigen können. Mit Ausnahme von verlagerten Linsen können diese Augenprobleme auch in der Allgemeinbevölkerung auftreten, weshalb Ärzte nicht immer erkennen, dass diese Veränderungen durch Marfan-Syndrom verursacht wurden. Es ist wichtig […]
Tags: Marfan Syndrome , Patients & Families
Tags: All , Caregivers, Patients & Families
Family Planning and Pregnancy
Decisions about family planning can be difficult and very emotional when one of the prospective parents has a genetic disorder, such as Marfan syndrome. Before making any decisions, parents should understand the many options now available, as well as the potential risks to the child and the mother. A genetic counselor or the nurse in […]
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.