A Month of Gratitude & Self-Care 2026
During Mental Health Awareness Month, we’re sharing some quick ideas for focusing on you.
Condition: All
Mental Health Resources
While most people with chronic conditions focus on their physical health, mental health is often ignored. Having a connective tissue condition isn’t easy, so give your mind the TLC it needs.
Referral Letter and Features Chart
We created a template referral letter for you to use to simplify the process when you are referring a patient to a specialist for further evaluation or testing for the diagnosis of Marfan syndrome or a related disorder. The letter makes it easy for you to note the features you observed that raise your suspicion of these disorders.
Recommended Criteria for Development of a Marfan Clinic
The diagnosis, evaluation, and management of Marfan syndrome and related conditions require health practitioners from multiple disciplines with specialized knowledge, skills, and experience in heritable disorders of connective tissue. Patients and families are best served in clinics with demonstrated interest and expertise in this field.
Request Materials
Use this form to request printed versions of our fact sheets, brochures, and booklets.
[hubspot portal=”318185″ id=”9b7d2cd8-6b21-473d-b3be-53d19db50940″ type=”form”]
Materials Request