During Mental Health Awareness Month, we’re sharing some quick ideas for focusing on you. Month of Self-Care & Gratitude 2026Download Share to Facebook Twitter Pinterest Email
View Post Awareness September 20, 2025September 20, 2025 “I still have so much to live for”: healing after Marfan-related aortic surgeries Guest Blogger Rosa Adriana Felix is an aortic surgery survivor. She shares her story in her own... Read More
View Post Awareness March 14, 2025March 14, 2025 “Marfan just happens to be a part of me…” Andrea’s Story Andrea Aguiar shares her first-person experiences living with Marfan syndrome in this guest... Read More
View Post Awareness, Community, Quality of Life, Related Conditions November 16, 2024November 17, 2024 “And There My Life Began”: Trip of a Lifetime Leads to Conference, Loeys-Dietz Diagnosis After a lifetime of medical issues that were at first unexplainable, then eventually labeled... Read More