Walk for Victory to me means support, family, connections, and FUN! 

The Walk for Victory and Marfan Foundation are incredibly near and dear to my heart. Throughout my grief journey, they have provided support, compassion, and a sense of community when I needed it most.
While nothing can erase a tragedy, turning that loss into something that helps others is one of the most meaningful ways to honor those we love. I’m grateful to stand with this community and support a cause that is making a difference.

When you or a loved one has a connective tissue disorder, being with others in the same boat is like nothing else. There is an instant understanding and connection about fears, worries, dreams, surgeries, doctors’ appointments, aorta sizes, z-scores, mobility aids…you name it. Walk for Victory is special because it’s one of the only places I can spend time with other families who have Marfan or a related condition in such an uplifting way. There are sad moments, of course, but also so much hope and joy when we see how others are doing and all we are doing together to raise awareness and funds for research. It’s one of my favorite days of the year, and I’m so incredibly grateful to be a part of it.

The Marfan Walk(s) are such beautiful events…they provide a local option for families and professionals to come together to raise awareness and charitable contributions in a fun, hopeful environment. Our first contact with the Marfan Foundation was the NY walk and we met so many incredible people. Over 10 years later, we have stayed committed to dedicating our efforts in various ways to the foundation, but the walk is always one of our favorite days of the year!

It’s wonderful to see so many people come out and support people with Marfan syndrome and related conditions and their loved ones. These local Walks are so important to spreading awareness and providing a sense of community. I can’t wait to see everyone at our next Walk for Victory. I can’t wait to be involved with the community and help make an impact locally.