Know the Signs, Fight for Victory

Walk for Victory

Walk for Victory is a connection-focused event that brings our community together to make a difference for our family members and friends affected by genetic aortic and vascular conditions, including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes.

It is also a time to celebrate the positive impact we can make together. In 2022-2023, our Walk for Victory participants created unprecedented awareness and raised more funds to support our mission than ever before. We hope you will join us as we strive to raise over $1,500,000 this year! Thank you for being a part of this movement. 

  • The Walk has been instrumental for our family in making connections with the local Marfan community here in Ohio. The Walk has also given us a great excuse to get together with family and friends and spread awareness about connective tissue disorders. I am really proud of the work we have done to help fund critical research projects and continue spreading awareness of Marfan syndrome and related disorders.

    Shannon Mace

    Cleveland, OH

  • We first got involved with the Walk for Victory because of the unknown. If Marfan was going to be something we were going to have in our lives, we wanted to know more about it and meet other people who were living with it. Now, we want to help other people learn and connect. Living with Marfan or a related condition can be a daily struggle. You can see it on their faces. But then you also see the relief when they realize they aren’t alone and are surrounded by others who understand.

    Justin Efurd

    Houston, Texas

  • I loved being with the group, just walking and feeling the sense of connection with everyone there. We shared stories and laughed and cried together. It was an amazing day.

    Jessica Thomas

    Indianapolis, Indiana

  • We met families in our stage of life who have a lot in common with us, which is especially important when you have really intense things in your life… While we wanted to be connected with others, we also wanted to support the Foundation, including its research program. It’s the only way we’ll be able to increase the quality of life for people affected by Marfan, Loeys-Dietz, and VEDS.

    Katherine Doehring

    Houston, Texas

  • It’s wonderful to see so many people come out and support people with Marfan syndrome and related conditions and their loved ones. These local Walks are so important to spreading awareness and providing a sense of community. I can’t wait to see everyone at our next Walk for Victory. I can’t wait to be involved with the community and help make an impact locally.

    Christy Nath

    Portland, Oregon

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Walk Incentives

Walk Teams can earn exciting new prizes!

Earn your first prize when your team raises $1,000, and the more you raise, the more prizes you earn — all the way up to a special team dinner the night before the Walk!  This is our way of saying thank you and celebrating Walk Teams for investing time and energy in giving back to the community.

  • $1,000

    Team Name on Walk T-Shirts

  • $5,000

    Team Tent at the Walk for Victory

  • $10,000

    Top Fundraiser Team Hats

  • $15,000

    VIP Team Dinner

  • Stronger Together

    A reflection from The VEDS Movement as The Marfan Foundation approaches its 40-year anniversary.

  • Nick’s Journey in Honor of Connor’s Big Heart

    On the morning of December 3, 2020, Nick Metz, a 16-year-old in California, was schooling from home like most kids in the US when I pulled him to rush to the hospital. His 13-year-old brother, Connor, had been taken to the ER earlier in…

  • Reflecting on Awareness

    Recently my son and I were reading a book about cities before bed. “Mommy?” he asked, as he turned to the page with a hospital. He saw the operating room. “What are they doing in there?” “That person is having…