Know the Signs, Fight for Victory

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February 2024

HeartWorks Chicago

Join us for a special evening at the Chicago HeartWorks Gala on Friday, February 23, as we come together to support the life-saving mission of The Marfan Foundation and build a brighter future for our loved ones affected by Marfan syndrome, Loeys-Dietz syndrome, VEDS, and related genetic aortic and vascular conditions. Guests will enjoy cocktails, […]
23 Feb
The Fairmont Hotel, Chicago
200 N Columbus Dr, Chicago, IL 60601

VEDS Parents

If you are a parent of a child with VEDS, we invite you to join other parents to discuss the challenges of raising a child with this condition. This group will be hosted by Jan Lynch, RN, director of The Marfan Foundation’s Help & Resource Center, and Abby DeLong, VEDS parent and patient advocate.
28 Feb
8:00 pm
Virtual

UnCorked 2024

Join Us!  You are invited to join us for a special evening at  UnCorked, a wine-tasting event on Thursday, February 29th at 6 PM, as we come together to support the life-saving mission of The Marfan Foundation and build a brighter future for those affected by Marfan syndrome, Loeys-Dietz syndrome, VEDS, and related genetic aortic and vascular […]
29 Feb
6:00 pm - 9:00 pm
The Metropolitan Club
1 East 60th Street, New York, NY 10022
March 2024

Walk For Victory – Houston

Join the Walk for Victory movement!  Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.  Together, we raise awareness and help families get the best medical care from leading experts.  Together, we help fund events and programs that make life better for our community: […]
02 Mar
12:00 pm - 3:00 pm
Discovery Green Park – Grace Event Lawn
1500 McKinney St. Houston, Texas 77010

Walk For Victory – Phoenix

Join the Walk for Victory movement!  Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.  Together, we raise awareness and help families get the best medical care from leading experts.  Together, we help fund events and programs that make life better for our community: […]
03 Mar
12:00 pm - 3:00 pm
Chaparral Park - Central Ramada
5401 N Hayden Rd., Scottsdale, AZ 85250

Teen Game Night

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in the fun. We will be playing games using the Jackbox game series.
04 Mar
7:30 pm
Zoom

Marfan Connect

Are you diagnosed with Marfan syndrome or a related disorder? Are you between 30 and 50 years old? Would you like to connect with others living with Marfan syndrome and related disorders for support and to share resources and information? If so, this group is for you.
07 Mar
5:00 pm
Virtual

A Time to Talk: Monday Matters!

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.
11 Mar
Virtual

Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful.
12 Mar
6:00 pm - 7:00 pm
Virtual
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