Know. Connect. Thrive.

Calendar

Yearly Monthly Weekly Daily List
May 2026

Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful.
12 May
6:00 pm - 7:00 pm
Virtual

LDS Connect

Please Note: Due to our scheduling conflicts with our Conference in Atlanta, this group will meet on Thursday July 3, 2025 at 7pm EST. (instead of Thursday July 10, 2025) If you have been diagnosed with LDS, this group is specifically for you! This is an opportunity to meet others with LDS and talk about […]
14 May
7:00 pm - 8:00 pm

NYC/Tristate Symposium: Living Better with Marfan, Loeys-Dietz, VEDS, & Stickler

The Marfan Foundation and Weill Cornell Medicine present an educational opportunity for individuals and families living with Marfan, Loeys-Dietz, VEDS, Stickler, and related conditions. This informative and engaging event will provide the latest updates on treatment, medical management, and quality-of-life issues, and includes opportunities to network with the medical experts and connect with others in […]
16 May
7:45 am - 3:00 pm
Ruben Conference Center - Weill Cornell Medicine
1305 York Ave, New York, NY 10065

Walk For Victory – Iowa

Join the Walk for Victory movement!  Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.  Together, we raise awareness and help families get the best medical care from leading experts.  Together, we help fund events and programs that make life better for our community: […]
16 May
11:00 am - 2:00 pm
Raccoon River Park, Shelters: Coneflower A-C
2500 Grand Ave West Des Moines, IA 50265

Walk For Victory – Pittsburgh

Join the Walk for Victory movement!  Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.  Together, we raise awareness and help families get the best medical care from leading experts.  Together, we help fund events and programs that make life better for our community: […]
16 May
12:00 pm - 3:00 pm
North Park
303 Pearce Mill Rd, Allison Park, PA 15101

Teen Talk

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in for a talk with other teens they can relate to.
18 May
7:30 pm - 9:00 pm
Zoom

Kids Club

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.
19 May
7:00 pm - 9:00 pm
Virtual
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