Know the Signs, Fight for Victory

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October 2023

Marfan Connect

Are you diagnosed with Marfan syndrome or a related disorder? Are you between 30 and 50 years old? Would you like to connect with others living with Marfan syndrome and related disorders for support and to share resources and information? If so, this group is for you. ...
05 Oct
5:00 pm
Virtual

A Time to Talk: Monday Matters!

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis. ...
09 Oct
8:00 pm - 9:00 pm
Virtual

Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful. ...
10 Oct
6:00 pm - 7:00 pm
Virtual

LDS Connect

If you have been diagnosed with VEDS, this group is specifically for you! This is an opportunity to meet others with VEDS and talk about the challenges we all face day-to-day. ...
12 Oct
7:00 pm - 8:00 pm
Virtual

Camp Victory for Families – Georgia

Similar to the kids’ camp, Camp Victory for Families offers children and teens with genetic aortic and vascular conditions and their families a chance to enjoy some of the same traditional camp activities, both as a family and with their peers. Families attending the 2-night family camp stay together in accessible bunks and dine and socialize with […] ...
13 - 15 Oct
All Day
Camp Twin-Lakes
210 S Broad Street, Unit 5, Winder, GA 30680

Kids Club

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis. ...
17 Oct
7:00 pm - 9:00 pm
Virtual
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