Know the Signs, Fight for Victory

Do you have a question? We can help.

The registered nurse in our Help & Resource Center answers your questions Monday-Friday 9:00 AM to 5:00 PM Eastern Time. We will respond to your inquiry as soon as possible. If you are currently experiencing an emergency or crisis, you should contact your doctor, call 911, or go to the nearest emergency room.

Do you have a non-medical question? Use our contact us form so your inquiry gets to the right person.

Contact Information


This form is monitored by our on-staff nurse and is intended for medical and mental health questions related to Marfan, VEDS, LDS, and related conditions.

For general inquires/to get in touch with a Marfan staff member on non-medical topics, please visit the contact us form under About Us. 
Demographic Information
Please tell us a little more about yourself to help us better serve you.

Please provide YOUR information. If your question is about another person, please choose "I am not affected" and select "my question is about someone else" below to provide their information.