Your Donation Can Save Lives
Your donation assists us in saving lives and improving the quality of life of individuals and families with Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions.
The Marfan Foundation is a 501(c)(3) non-profit organization; therefore, your contribution is tax-deductible as allowed by law.
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Join Thousands of Others Fighting for Victory
Supports regional symposiums on Marfan, Loeys-Dietz, and VEDS.
Supports educational webinars on medical and quality of life topics.
Supports virtual support groups.
Stories of Hope
Mental and Physical Recovery from Surgery
This is me y’all. In all my glory. I’m scarred from the belly up. I have been conquering this thing called Marfan syndrome since birth. At the age of 25, I’ve been under more times than I would like to count. Growing up, Dr….
Three Things I’ve Learned In 25 Years Since Diagnosis
I was diagnosed with Marfan syndrome at the age of ten during a visit to the Mayo Clinic on referral from my orthodontist. I’m now in my thirties and working as an attorney in Chicago.
Other Ways You Can Fight for Victory
Only through your donations can we create a brighter future for the thousands of children and families living with Marfan syndrome and related conditions. We offer options for becoming a member, making a memorial or honorarium gift, and more.