The Marfan Blog

Connected and Not Alone

I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...

Advocacy, Awareness, Community, Education June 1, 2023June 1, 2023

Community, Conference, Quality of Life May 3, 2023May 4, 2023

A Teen’s Perspective: Finding a Community at Conference

As a teen with a connective tissue condition, building relationships with others who “get” you...

Advocacy, Conference, Diagnosis, Know the Signs April 6, 2023April 24, 2023

A Trip to Conference Leads to a Marfan Diagnosis for 30+ Family Members

Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...

Advocacy, Awareness, Community February 21, 2023February 17, 2023

Passion and Outreach Lead to Marfan Awareness

A Marfan Awareness Month Blog Photo: In January, Christopher was presented with a...

Awareness, Mental Health February 13, 2023February 13, 2023

Mental Health: Sharing Leads to Support and Hope

What are the mental health issues that people with Marfan syndrome and related connective tissue...

Awareness February 6, 2023February 2, 2023

Dr. Douglas Richter: Insights from a Medical Expert with Marfan Syndrome

A Marfan Awareness Month Blog Marfan Awareness Month is a time to raise awareness of Marfan...

Awareness January 31, 2023January 31, 2023

Pamela Cummings: Advocacy Though Online Action

A Marfan Awareness Month Blog Q&A There are many ways to spread Marfan awareness and...

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The Marfan Blog

Connected and Not Alone

A Teen’s Perspective: Finding a Community at Conference

A Trip to Conference Leads to a Marfan Diagnosis for 30+ Family Members

Passion and Outreach Lead to Marfan Awareness

Mental Health: Sharing Leads to Support and Hope

Dr. Douglas Richter: Insights from a Medical Expert with Marfan Syndrome

Pamela Cummings: Advocacy Though Online Action

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Together, We are Fighting for Victory

Know the signs. Fight for victory.

Together, We are Fighting for Victory

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Have a question? We can help.

Together, We are Fighting for Victory

Know the signs. Fight for victory.

Together, We are Fighting for Victory