Connected and Not Alone
I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...
I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...
As a teen with a connective tissue condition, building relationships with others who “get” you...
Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...
A Marfan Awareness Month Blog Photo: In January, Christopher was presented with a...
What are the mental health issues that people with Marfan syndrome and related connective tissue...
A Marfan Awareness Month Blog Marfan Awareness Month is a time to raise awareness of Marfan...
A Marfan Awareness Month Blog Q&A There are many ways to spread Marfan awareness and...