Optimizing Physical Health with Marfan Syndrome and Related Conditions
Thanks to earlier diagnosis, advances in medical care, and improved treatment options, people with...
The Marfan Blog
“Knowledge Is Power”: Mother & Daughter Raise VEDS Awareness, Offer Support Together
For Bella Marin and her mom, Frances, Bella's VEDS journey is a road traveled...
Why the “V” Matters to Me: Living with VEDS – Vascular Ehlers-Danlos syndrome
"Our experiences matter, our futures matter, and our lives matter..." VEDS Movement...
National Estate Planning Awareness Week: October 19 – 25, 2026
A Gift of Gratitude “I learned so much from the Marfan Foundation. What if it never...
Diagnosed with Stickler Syndrome 18 Years Ago, Marie Law, 63, says: “You Can Live a Full Life.”
Marie Law with her son, David. He is the only one of her five children who has Stickler...
Camp Victory 2026: Where Summer Fun Builds Lasting Connections
There are subtle changes at Camp Victory for Kids’ two five-night summer camp sessions each...
After Her Husband’s Aortic Dissection: Heidi’s Story
In the aftermath of her husband Chris’s aortic dissection, Heidi Underwood had no plans...
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