Joaquin’s Story: Aortic Disease Awareness
"My whole world changed in an instant..." On July 31, 2020, my whole world changed in an...
Know the Signs, Fight for Victory
"My whole world changed in an instant..." On July 31, 2020, my whole world changed in an...
I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...
As a teen with a connective tissue condition, building relationships with others who “get” you...
Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...
A Marfan Awareness Month Blog Photo: In January, Christopher was presented with a...
What are the mental health issues that people with Marfan syndrome and related connective tissue...
A Marfan Awareness Month Blog Marfan Awareness Month is a time to raise awareness of Marfan...