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Awareness is Never Losing Someone Unexpectedly to Marfan Syndrome
Helping Others Helps Me I share because I care. It sounds simple, but it is so true. There are...
Blog Category: Volunteer
Volunteer Drives Successful First-Year Proclamation Project
Amy Kipnis, the volunteer leader of our Legislative Action Team, has been a long-time volunteer at...
Reflecting on Awareness
Recently my son and I were reading a book about cities before bed. “Mommy?” he asked,...
Sydney Lerman Pediatric Hospitality Program: Join Sydney and Carly in Giving Back
Sydney Lerman, of Westchester, NY, is a smart, fun-loving, and spirited daughter, sister, cousin,...
My Marfan Story: Selma Kerzman
Blake and I met in high school. When I went to his high school graduation, I met his mom and dad....
Carolyn Fisher – My Marfan Story
“You are so lazy! Why don’t you get a life!” These words I heard belching from my...
7 Simple Fundraising Tips You Can Use Today
“Where there is unity there is always victory.” –Publilius Syrus Our nationwide Walk...
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Together, We are Fighting for Victory
Together, We are Fighting for Victory
