An Ode to the Spoon Theory and Online Communities
Chronically ill and disabled individuals utilize the internet to find community and spread...
Chronically ill and disabled individuals utilize the internet to find community and spread...
Emily Ladau, author and activist, is a part of the rare disease community. She lives with Larsen...
Helping Others Helps Me I share because I care. It sounds simple, but it is so true. There are...
Jonathan Brink, an 18-year-old who attends Branham High School in California and is a Boy Scout in...
Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...
Amy Kipnis, the volunteer leader of our Legislative Action Team, has been a long-time volunteer at...
The broad goal of Marfan awareness is about seeing the complete person behind the diagnosis. My...