Conference Archives - Marfan Foundation

Invaluable Little Moments

At a time when technology infuses our lives in almost every way, it is hard to imagine that the...

Community, Conference March 11, 2019February 24, 2021

The diagnosis of a potentially life-threatening genetic disorder like Marfan syndrome, Loeys...

Connection is at the core of the Snyder family’s resilience. Through a combination of close...

Ashley Burks was 23 when her life changed. That year, 2005, she excitedly attended the Marfan...

Conference May 15, 2017February 24, 2021

The Marfan Foundation’s Teen Council is a force to be reckoned with now. And they are clearly...

Community, Conference May 28, 2015February 24, 2021

My journey with Marfan syndrome has been a long and complicated one. I was first tested when I was...

Awareness, Community, Conference April 8, 2015June 9, 2022

The end of this year will mark 10 years since my world changed, 10 years since my parents scoured...