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A Teen’s Perspective: Finding a Community at Conference
As a teen with a connective tissue condition, building relationships with others who “get” you...
Blog Category: Conference
A Trip to Conference Leads to a Marfan Diagnosis for 30+ Family Members
Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...
Invaluable Little Moments
At a time when technology infuses our lives in almost every way, it is hard to imagine that the...
Finding Commonality at the Marfan Annual Conference
The diagnosis of a potentially life-threatening genetic disorder like Marfan syndrome, Loeys...
Peace Through Connection
Connection is at the core of the Snyder family’s resilience. Through a combination of close...
A Make-Over Because of the Marfan Annual Conference
Ashley Burks was 23 when her life changed. That year, 2005, she excitedly attended the Marfan...
“If This is the Future of the Foundation, Then Victory is Around the Corner!” Teen Council members are leaders and role models
The Marfan Foundation’s Teen Council is a force to be reckoned with now. And they are clearly...
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Together, We are Fighting for Victory
Together, We are Fighting for Victory
