Invaluable Little Moments
At a time when technology infuses our lives in almost every way, it is hard to imagine that the...
At a time when technology infuses our lives in almost every way, it is hard to imagine that the...
The diagnosis of a potentially life-threatening genetic disorder like Marfan syndrome, Loeys...
Connection is at the core of the Snyder family’s resilience. Through a combination of close...
Ashley Burks was 23 when her life changed. That year, 2005, she excitedly attended the Marfan...
The Marfan Foundation’s Teen Council is a force to be reckoned with now. And they are clearly...
My journey with Marfan syndrome has been a long and complicated one. I was first tested when I was...
The end of this year will mark 10 years since my world changed, 10 years since my parents scoured...