Julie Kurnitz’s Marfan Story Gives Hope to Others
Ten years ago, we lost a dear member of our community, Julie Kurnitz. Julie served on our Board of...
Ten years ago, we lost a dear member of our community, Julie Kurnitz. Julie served on our Board of...
“I wouldn’t worry too much about the rapid heart beat, but you should look at this.” Those...
I first got involved with The Marfan Foundation the summer before my freshman year of high school....
I don’t have the greatest memory, so I am not sure when I attended my first conference. I do...
There we were, at The Marfan Foundation’s 2013 Annual Family Conference in Beverly Hills,...
Though I stand at a measly 5'8 for a “Marf,” as a freshman in high school, I towered over my...
[vik-tuh-ree, vik-tree] A success or superior position achieved against any opponent,...