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Blog Category: Healthcare Management

Community, Healthcare Management July 29, 2026July 29, 2026

From Lived Experience to Healthcare Professional

How community members are shaping the future of care. For many in the Marfan Foundation...

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Advocacy, Awareness, Community, Diagnosis, Español, Healthcare Management, Know the Signs September 17, 2025September 24, 2025

Mi Historia con el Síndrome de Marfan y la Disección Aórtica

My Story with Marfan Syndrome and Aortic Dissection La bloguera invitada Emily Herrera...

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Community, Healthcare Management, Quality of Life December 12, 2023December 12, 2023

Generational Care Provides Continuity

Debra Theine has experienced Marfan syndrome’s impact as a daughter, patient, mother, and...

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Awareness, Community, Education, Healthcare Management, Mental Health February 14, 2022February 11, 2022

Mental Health with Marfan Syndrome (in a Post-2020 World)

When you have a lifelong condition like Marfan syndrome, your daily experience looks different...

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Awareness, Education, Healthcare Management February 7, 2022February 7, 2022

Dr. Shana Kusin: Perspective from an ER Doctor who is a Marfan Mom

Marfan Awareness Month is a time to raise awareness of Marfan syndrome among the public and...

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Awareness, Diagnosis, Education, Healthcare Management December 13, 2021December 13, 2021

My Doctor Knew Me – He Knew Amy

In 1971, at the young age of two, Amy Grimshaw had a routine appointment with a doctor at the Army...

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