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Blog Category: Healthcare Management

Awareness, Community, Education, Healthcare Management August 20, 2026August 25, 2026

A Legacy of Gratitude

Every August, Make-A-Will Month serves as an important reminder that creating an estate plan isn't...

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Community, Healthcare Management July 29, 2026August 20, 2026

From Lived Experience to Healthcare Professional

How community members are shaping the future of care. For many in the Marfan Foundation...

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Advocacy, Awareness, Community, Diagnosis, Español, Healthcare Management, Know the Signs September 17, 2025September 24, 2025

Mi Historia con el Síndrome de Marfan y la Disección Aórtica

My Story with Marfan Syndrome and Aortic Dissection La bloguera invitada Emily Herrera...

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Community, Healthcare Management, Quality of Life December 12, 2023December 12, 2023

Generational Care Provides Continuity

Debra Theine has experienced Marfan syndrome’s impact as a daughter, patient, mother, and...

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Awareness, Community, Education, Healthcare Management, Mental Health February 14, 2022February 11, 2022

Mental Health with Marfan Syndrome (in a Post-2020 World)

When you have a lifelong condition like Marfan syndrome, your daily experience looks different...

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Awareness, Education, Healthcare Management February 7, 2022February 7, 2022

Dr. Shana Kusin: Perspective from an ER Doctor who is a Marfan Mom

Marfan Awareness Month is a time to raise awareness of Marfan syndrome among the public and...

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