Education Archives - Marfan Foundation

A Legacy of Gratitude

Every August, Make-A-Will Month serves as an important reminder that creating an estate plan isn't...

Community, Education June 25, 2026August 20, 2026

For families navigating life with a genetic aortic and vascular condition, the move from pediatric...

Doré Schubert knows well the emotional toll of living with chronic pain. Diagnosed with Marfan...

During Mental Health Awareness Month, we recognize that the impact of a genetic aortic or...

Awareness, Education, Know the Signs September 16, 2025September 18, 2025

Guest Blogger Ryan Rodarmer is the Director of the VEDS Movement, a Division of the Marfan...

The VEDS Movement Director Ryan Rodarmer is a genetic counselor and Type A dissection...

Awareness, Diagnosis, Education February 9, 2024July 31, 2024

I was diagnosed with Marfan Syndrome at birth. My father had a spontaneous mutation, and he passed...