Education Archives - Marfan Foundation

3 Ways Therapy Can Help You Cope with Chronic Pain

Doré Schubert knows well the emotional toll of living with chronic pain. Diagnosed with Marfan...

During Mental Health Awareness Month, we recognize that the impact of a genetic aortic or...

Awareness, Education, Know the Signs September 16, 2025September 18, 2025

Guest Blogger Ryan Rodarmer is the Director of the VEDS Movement, a Division of the Marfan...

The VEDS Movement Director Ryan Rodarmer is a genetic counselor and Type A dissection...

Awareness, Diagnosis, Education February 9, 2024July 31, 2024

I was diagnosed with Marfan Syndrome at birth. My father had a spontaneous mutation, and he passed...

I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...

Advocacy, Education April 11, 2022April 11, 2022

Emily Ladau, author and activist, is a part of the rare disease community. She lives with Larsen...