Connected and Not Alone
I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...
Know the Signs, Fight for Victory
I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...
Emily Ladau, author and activist, is a part of the rare disease community. She lives with Larsen...
When you have a lifelong condition like Marfan syndrome, your daily experience looks different...
Marfan Awareness Month is a time to raise awareness of Marfan syndrome among the public and...
Helping Others Helps Me I share because I care. It sounds simple, but it is so true. There are...
In 1971, at the young age of two, Amy Grimshaw had a routine appointment with a doctor at the Army...
In 2020, the world saw that there are many benefits to working from home, especially for...