Marfan Moms: The Ultimate Support Group
When my daughter, Gabriella, was diagnosed with Marfan syndrome at the age of five our family was...
Blog Category: Family Planning
How It’s Going
In 2010, Maya Brown-Zimmerman and her husband, Mark, co-wrote a blog post, Marfan Through a...
To Know or Not to Know: Genetic Testing and Marfan Syndrome
How the value of genetic testing has improved Just a few years ago, diagnosis of Marfan...
Beautiful Gift
Hi my name is Allison. I was diagnosed with Marfan syndrome when I was 15 years old after my older...
Pregnancy and Marfan Syndrome: An Update from Melissa L. Russo, MD
Marfan syndrome is a connective tissue disorder that has effects on the heart, blood vessels,...
Jamie Efurd – My Marfan Story
“Make it through the door, Jamie. Make it through the door.” Those were my first thoughts as...
Carolyn Fisher – My Marfan Story
“You are so lazy! Why don’t you get a life!” These words I heard belching from my...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
