Diagnosed with Stickler Syndrome 18 Years Ago, Marie Law, 63, says: “You Can Live a Full Life.”
Marie Law with her son, David. He is the only one of her five children who has Stickler...
Blog Category: Quality of Life
Camp Victory 2026: Where Summer Fun Builds Lasting Connections
There are subtle changes at Camp Victory for Kids’ two five-night summer camp sessions each...
Meet Stephanie: Nurse, Mom, and Help & Resource Center Advocate
Thrive Connectors partner with community members every day to help more people Know. Connect....
How a Marfan Foundation Conference Led to a Cross-Country Forever Friendship: Jennie & Danielle’s Story
Jennie Aucoin traveled to the Marfan Foundation Conference in Atlanta in July of...
After Years of Medical Mysteries, Genetic Test Turns Up Marfan Syndrome – and a Life-Changing Surprise
Summer McKesson's compelling story recently put Marfan in the news with multiple national...
Camp Victory: Making Friends for Life
“My son thoroughly enjoyed his first time at camp,” said Vicci from the UK whose 11-year-old...
Today is VEDS Action Day
Please note: this story discusses and depicts emergency medical experiences. Guest...
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