A Teen’s Perspective: Finding a Community at Conference
As a teen with a connective tissue condition, building relationships with others who “get” you...
Blog Category: Quality of Life
Carrying His Heart in Mine
My story about Marfan syndrome mostly takes a back seat to my husband's. He's the one with Marfan,...
Power Couple Surges Through Connective Tissue Condition to Help Others
On a crisp day in 2010, Pam Moultrup entered the hospital. She checked in at the reception desk...
Beauty Enthusiast Overcomes Obstacles
Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx,...
Working from Home and Your Mental Health: The Positives
In 2020, the world saw that there are many benefits to working from home, especially for...
Losing My Sight Saved My Life
Jasmine’s family (l-r) Mom Joanne Duffey, dad Alvin Duffey, Jasmine, sister Jawanda Duffey, and...
The Case of the Tell-Tale Toes
If you have a connective tissue condition, chances are you are probably having problems with your...
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Together, We Can Know the Signs
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Together, We Can Know the Signs
and Fight for Victory