Patrick’s 65+ Years with Marfan Syndrome: “I’ve had a normal life for the most part…”
Patrick Maguire is retired now and we are so grateful that he spends a lot of his free time...
Know the Signs, Fight for Victory
Patrick Maguire is retired now and we are so grateful that he spends a lot of his free time...
Decisions around family planning, pregnancy, and related considerations are very personal. We...
Community member Andrew Rankins shares his first-person experiences with Marfan and an early-stage...
After a lifetime of medical issues that were at first unexplainable, then eventually labeled...
Guest writer Mazzy Sass is a junior at Schreiber High School in Port Washington, NY (also the...
Debra Theine has experienced Marfan syndrome’s impact as a daughter, patient, mother, and...
As a teen with a connective tissue condition, building relationships with others who “get” you...