How a Marfan Foundation Conference Led to a Cross-Country Forever Friendship: Jennie & Danielle’s Story
Jennie Aucoin traveled to the Marfan Foundation Conference in Atlanta in July of...
Blog Category: Quality of Life
After Years of Medical Mysteries, Genetic Test Turns Up Marfan Syndrome – and a Life-Changing Surprise
Summer McKesson's compelling story recently put Marfan in the news with multiple national...
Camp Victory: Making Friends for Life
“My son thoroughly enjoyed his first time at camp,” said Vicci from the UK whose 11-year-old...
Today is VEDS Action Day
Please note: this story discusses and depicts emergency medical experiences. Guest...
Community Member, Physical Therapist
Diane Rich Shares Her 2025 Conference Experience Diane Rich, PT, DPT offers her first-person...
“An emotional jamboree…” One parent’s perspective on Marfan syndrome
Monica shares her personal perspective regarding wellbeing and navigating her "parenting journey"...
Why Clinical Trials Matter for the VEDS Community
The VEDS Movement Director Ryan Rodarmer is a genetic counselor and Type A dissection...
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