Know the Signs, Fight for Victory

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November 2025

A Time to Talk: Monday Matters!

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.
10 Nov
Virtual
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Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful.
11 Nov
6:00 pm - 7:00 pm
Virtual
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Uncorked 2025

Raise a glass with us at UnCorked, our annual wine tasting fundraiser, on Monday, November 11th, from 6:00–9:00 PM at The Metropolitan Club. Together, we’ll enjoy a memorable evening while supporting the life-saving mission of The Marfan Foundation—bringing hope and brighter futures to those affected by Marfan syndrome, Loeys-Dietz syndrome, VEDS, and related genetic aortic […]
11 Nov
6:00 pm - 9:00 pm
The Metropolitan Club
1 East 60th Street, New York, NY 10022
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Empowered Relief® with Dr. Beth Darnall

Empowered Relief® is a one-time class that equips individuals with essential pain relief skills in just 2.5 hours. Participants apply the skills and tools to create their personalized plan. Applied daily at home, the personalized plan helps participants master the skills. Multiple published studies show Empowered Relief® helps reduce pain and pain impacts on activity, […]
12 Nov
1:00 pm - 3:30 pm
Zoom
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VEDS Parent Support Group for Adult Children

If you are a parent of an adult (18 years and older) with VEDS, we invite you to join other parents to discuss your experiences. Jan Lynch, RN, of The Marfan Foundation’s Help & Resource Center, will host this group. * If your child is under 18, please register for the VEDS Parents Support Group * This group […]
12 Nov
7:00 pm - 8:00 pm
Zoom
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LDS Connect

Please Note: Due to our scheduling conflicts with our Conference in Atlanta, this group will meet on Thursday July 3, 2025 at 7pm EST. (instead of Thursday July 10, 2025) If you have been diagnosed with LDS, this group is specifically for you! This is an opportunity to meet others with LDS and talk about […]
13 Nov
7:00 pm - 8:00 pm
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Houston Heartworks Gala

You are invited to join us for a special evening at the 5th Annual Houston HeartWorks Gala on Friday, November 14 as we come together to support the life-saving mission of The Marfan Foundation and build a brighter future for our loved ones affected by Marfan syndrome, Loeys-Dietz syndrome, VEDS and related genetic aortic and vascular conditions. Guests […]
14 Nov
6:30 pm - 11:00 pm
Houston Country Club
1 Potomac Dr, Houston, TX 77057
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Teen Talk

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in for a talk with other teens they can relate to.
17 Nov
7:30 pm - 9:00 pm
Zoom
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Kids Club

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.
18 Nov
7:00 pm - 9:00 pm
Virtual
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