Know the Signs, Fight for Victory

Calendar

Yearly Monthly Weekly Daily List
October 2025

Northern IL Chapter Fall Fest 2025

Join the Northern IL Chapter for outdoor fall fun for the whole family with a hayride, bonfire, and cookout! Enjoy a fall afternoon together in Naperville at Knoch Knolls Nature Center! We’ll start with a hayride while sipping hot chocolate and apple cider. The Northern IL Chapter will supply hot dogs and ingredients for making […]
18 Oct
2:00 pm - 4:00 pm
Knoch Knolls Nature Center
320 Knoch Knolls Road, Naperville, IL 60565
View Detail

Teen Talk

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in for a talk with other teens they can relate to.
20 Oct
7:30 pm - 9:00 pm
Zoom
View Detail

Kids Club

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.
21 Oct
7:00 pm - 9:00 pm
Virtual
View Detail

VEDS Parents

If you are a parent of a child with VEDS, we invite you to join other parents to discuss the challenges of raising a child with this condition. This group will be hosted by Jan Lynch, RN, director of The Marfan Foundation’s Help & Resource Center, and Abby DeLong, VEDS parent and patient advocate.
22 Oct
8:00 pm
Virtual
View Detail

Pain Management

Are you or a loved one recently diagnosed with Marfan syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you.
23 Oct
7:00 pm
Virtual
View Detail

Camp Victory for Families: California 2025

Join us for this exciting opportunity to meet other families impacted by Marfan, VEDS, Loeys-Dietz, and related syndromes. Have fun with your entire family, participating in traditional camp activities in a safe, accessible environment. Registration fees have been significantly discounted thanks to the support of our generous donors, especially Keck Medicine of USC Cardiac and […]
24 - 26 Oct
4:00 pm - 10:00 am
Pali Retreat
30778 Highway 18, Running Springs, CA 92382
View Detail

Walk For Victory – St. Louis

Join the Walk for Victory movement!  Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.  Together, we raise awareness and help families get the best medical care from leading experts.  Together, we help fund events and programs that improve the lives of our community: […]
26 Oct
11:00 am - 2:00 pm
Queeny Park
550 Weidman Rd., St. Louis, MO 63131
View Detail

LDS Connect International

Please Note: Due to Memorial Day (US) this group will meet on Tuesday May 27, 2025 at 2pm EST. (Instead of Monday May 26, 2025) The LDS International Connect is a support group for any person living with Loeys-Dietz Syndrome, as well as parents and caregivers of people with Loeys-Dietz Syndrome. This group is intended […]
27 Oct
2:00 pm - 3:30 pm
Zoom
View Detail

Ask the VEDS Experts: Fireside Chat for Action Month

Join leading experts in Vascular Ehlers-Danlos syndrome (VEDS) for a special Action Month Fireside Chat. In this webinar, Drs. Sherene Shalhub, Peter Byers, Hal Dietz, and Shaine Morris will answer questions submitted by the VEDS community ahead of time, covering key topics like diagnosis, management, research, and living well with VEDS. This event offers a […]
27 Oct
6:00 pm - 7:15 pm
Zoom
View Detail
No event found!
Load More