Know the Signs, Fight for Victory

Calendar

Yearly Monthly Weekly Daily List
May 2025

Inaugural Memorable Moments Luncheon

The Memorable Moments Luncheon is a special event designed to highlight and celebrate significant programs that make a difference in the community. Led by Co-Chairs Alix Jennings & Barbara Lerman, The Inaugural Luncheon will highlight three key programs: Camp Victory, The Marfan Foundation Annual Conference, and The Sydney Lerman Hospitality Program. This luncheon aims to […]
04 May
11:30 am - 2:00 pm
Avra (NYC)
14 E 60th St, New York, NY 10022
View Detail

Teen Game Night

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in the fun. We will be playing games using the Jackbox game series.
05 May
7:30 pm
Zoom
View Detail

LDS Connect

If you have been diagnosed with LDS, this group is specifically for you! This is an opportunity to meet others with LDS and talk about the challenges we all face day-to-day. If you have not yet been diagnosed with LDS, please check out the Seeking Diagnosis group here
08 May
7:00 pm - 8:00 pm
View Detail

A Time to Talk: Monday Matters!

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.
12 May
Virtual
View Detail

Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful.
13 May
6:00 pm - 7:00 pm
Virtual
View Detail

VEDS Parent Support Group for Adult Children

If you are a parent of an adult (18 years and older) with VEDS, we invite you to join other parents to discuss your experiences. Jan Lynch, RN, of The Marfan Foundation’s Help & Resource Center, will host this group. * If your child is under 18, please register for the VEDS Parents Support Group * This group […]
14 May
7:00 pm - 8:00 pm
Zoom
View Detail
No event found!
Load More