Name: Marfan Connect
Start: 2026-05-07
End: 2026-05-07
Location: Virtual

May 2026

Marfan Connect

Are you diagnosed with Marfan syndrome or a related disorder? Are you between 30 and 50 years old? Would you like to connect with others living with Marfan syndrome and related disorders for support and to share resources and information? If so, this group is for you.

07 May

5:00 pm

Virtual

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Walk For Victory – Denver

Join the Walk for Victory movement! Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions. Together, we raise awareness and help families get the best medical care from leading experts. Together, we help fund events and programs that make life better for our community: […]

09 May

9:30 am - 12:30 pm

Great Lawn Park

101 Yosemite St, Denver, Lowry, CO 80230

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Walk For Victory – New York

09 May

10:00 am - 1:00 pm

Cathedral of The Incarnation

50 Cathedral Ave, Garden City, NY 11530

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Walk For Victory – Washington, DC

09 May

11:00 am - 2:00 pm

Meadowbrook Local Park

7901 Meadowbrook Ln, Chevy Chase, MD 20815

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Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful.

12 May

6:00 pm - 7:00 pm

Virtual

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Support for Parents/Guardians of Children with Early-Onset (Neonatal) Marfan Syndrome

12 May

8:00 pm

Virtual

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VEDS Parent Support Group for Adult Children

If you are a parent of an adult (18 years and older) with VEDS, we invite you to join other parents to discuss your experiences. * If your child is under 18, please register for the VEDS Parents Support Group * This group meets on the second Wednesday of every other month from 7-8:30 pm

13 May

7:00 pm - 8:30 pm

Zoom

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LDS Connect

Please Note: Due to our scheduling conflicts with our Conference in Atlanta, this group will meet on Thursday July 3, 2025 at 7pm EST. (instead of Thursday July 10, 2025) If you have been diagnosed with LDS, this group is specifically for you! This is an opportunity to meet others with LDS and talk about […]

14 May

7:00 pm - 8:00 pm

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Marfan Connect (50+) Support

Are you diagnosed with Marfan syndrome or a related condition? Are you 50 years old or older? Would you like to connect with others in your age group? If so, this group is for you.

15 May

3:00 pm

Virtual

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NYC/Tristate Symposium: Living Better with Marfan, Loeys-Dietz, VEDS, & Stickler

The Marfan Foundation and Weill Cornell Medicine present an educational opportunity for individuals and families living with Marfan, Loeys-Dietz, VEDS, Stickler, and related conditions. This informative and engaging event will provide the latest updates on treatment, medical management, and quality-of-life issues, and includes opportunities to network with the medical experts and connect with others in […]

16 May

7:45 am - 3:00 pm

Ruben Conference Center - Weill Cornell Medicine

1305 York Ave, New York, NY 10065