Walk For Victory – South Florida

Join the Walk for Victory movement!  Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.  Together, we raise awareness and help families get the best medical care from leading experts.  Together, we help fund events and programs that improve the lives of our community: […]

01 Feb - 13 Jun

12:00 pm - 3:00 pm

T.Y. Park (Shelters 0-3)

3300 N Park Rd, Hollywood, FL 33021

• • Facebook
  • Twitter
  • Linkedin
  • Email

View Detail

Virtual Game Day: Bingo Bash for Marfan Awareness Month!

Join us for a fun and friendly Virtual Bingo Game Day as we celebrate Marfan Awareness Month! This interactive event is a great chance for kids and teens to connect, play, and enjoy an afternoon of laughter and community—no matter where they are. We’ll play several rounds of Bingo with opportunities to win small prizes […]

15 Feb

2:00 pm - 3:00 pm

Zoom

• • Facebook
  • Twitter
  • Linkedin
  • Email

View Detail

Newly Diagnosed & Those Seeking Diagnosis

Are you or a loved one recently diagnosed with Marfan syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you.

16 Feb

2:00 pm - 3:00 pm

Virtual

• • Facebook
  • Twitter
  • Linkedin
  • Email

View Detail

Teen Talk

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in for a talk with other teens they can relate to.

16 Feb

7:30 pm - 9:00 pm

Zoom

• • Facebook
  • Twitter
  • Linkedin
  • Email

View Detail

Kids Club

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.

17 Feb

7:00 pm - 9:00 pm

Virtual

• • Facebook
  • Twitter
  • Linkedin
  • Email

View Detail

Support for Parents/Guardians of Children w/Marfan, LDS, related conditions

Are you are a parent or guardian of a child with Marfan syndrome, Loeys-Dietz syndrome or a related connective tissue condition? Is your child 18 years old and younger? If so, we invite you to join other parents to discuss the challenges of raising a child with one of these conditions. This group meets on […]

18 Feb

7:00 pm - 8:00 pm

Zoom

• • Facebook
  • Twitter
  • Linkedin
  • Email

View Detail

Conexiones: Estamos juntos (impartido en español)

Are you diagnosed with Marfan syndrome or a related disorder? Are you between 30 and 50 years old? Would you like to connect with others living with Marfan syndrome and related disorders for support and to share resources and information? If so, this group is for you.

18 Feb

7:30 pm

Virtual

• • Facebook
  • Twitter
  • Linkedin
  • Email

View Detail

HeartWorks Chicago

Join us for a special evening at the Chicago HeartWorks Gala on Friday, February 20, as we come together to support the life-saving mission of The Marfan Foundation and build a brighter future for our loved ones affected by Marfan syndrome, Loeys-Dietz syndrome, VEDS, and related genetic aortic and vascular conditions. Guests will enjoy cocktails, […]

20 Feb

Morgan Manufacturing

401 N Morgan St suite 100, Chicago, IL 60642

• • Facebook
  • Twitter
  • Linkedin
  • Email

View Detail

Marfan Connect (50+) Support

Are you diagnosed with Marfan syndrome or a related condition? Are you 50 years old or older? Would you like to connect with others in your age group? If so, this group is for you.

20 Feb

3:00 pm

Virtual

• • Facebook
  • Twitter
  • Linkedin
  • Email

View Detail

LDS Connect International

Please Note: Due to Memorial Day (US) this group will meet on Tuesday May 27, 2025 at 2pm EST. (Instead of Monday May 26, 2025) The LDS International Connect is a support group for any person living with Loeys-Dietz Syndrome, as well as parents and caregivers of people with Loeys-Dietz Syndrome. This group is intended […]

23 Feb

2:00 pm - 3:30 pm

Zoom

• • Facebook
  • Twitter
  • Linkedin
  • Email

View Detail

Lifecycle of the Aorta (LIVE)

Please join us for a webinar on the Lifecycle of the Aorta, a presentation from the Genetic Aortic Network, a division of The Marfan Foundation. Do you ever wonder what’s normal for the aorta and what’s due to a genetic aortic condition? This webinar will focus on the aorta from childhood, through adulthood, and into […]

23 Feb

7:00 pm - 8:30 pm

Zoom

• • Facebook
  • Twitter
  • Linkedin
  • Email

View Detail

VEDS Partners and Spouses

This group is for partners, spouses, and significant others of individuals diagnosed with VEDS to talk about their experience with others with similar experiences.

24 Feb

6:00 pm

Virtual

• • Facebook
  • Twitter
  • Linkedin
  • Email

View Detail