Know the Signs, Fight for Victory

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May 2025

LDS Connect International

Please Note: Due to Memorial Day (US) this group will meet on Tuesday May 27, 2025 at 2pm EST. (Instead of Monday May 26, 2025) The LDS International Connect is a support group for any person living with Loeys-Dietz Syndrome, as well as parents and caregivers of people with Loeys-Dietz Syndrome. This group is intended […]
26 May
2:00 pm - 3:30 pm
Zoom

Rescheduled LDS Connect International

Please Note: Due to Memorial Day (US) this group will meet on Tuesday May 27, 2025 at 2pm EST. (instead of Monday May 26, 2025) The LDS International Connect is a support group for any person living with Loeys-Dietz Syndrome, as well as parents and caregivers of people with Loeys-Dietz Syndrome. This group is intended […]
27 May
2:00 pm - 3:30 pm
Zoom

VEDS Parents

If you are a parent of a child with VEDS, we invite you to join other parents to discuss the challenges of raising a child with this condition. This group will be hosted by Jan Lynch, RN, director of The Marfan Foundation’s Help & Resource Center, and Abby DeLong, VEDS parent and patient advocate.
28 May
8:00 pm
Virtual
June 2025

Teen Game Night

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in the fun. We will be playing games using the Jackbox game series.
02 Jun
7:30 pm
Zoom

25th Anniversary HeartWorks NYC

Dream big with us as we celebrate the 25th Anniversary Heartworks Gala, benefiting The Marfan Foundation. For 25 years, this unforgettable evening has united a community of visionaries, advocates, and champions who share a common goal: transforming lives and creating a future filled with hope for those affected by Marfan syndrome and related genetic aortic and […]
03 Jun
All Day
Cipriani 42nd Street
110 E 42nd St, New York, NY 10017

Marfan Connect

Are you diagnosed with Marfan syndrome or a related disorder? Are you between 30 and 50 years old? Would you like to connect with others living with Marfan syndrome and related disorders for support and to share resources and information? If so, this group is for you.
05 Jun
5:00 pm
Virtual

A Time to Talk: Monday Matters!

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.
09 Jun
Virtual

Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful.
10 Jun
6:00 pm - 7:00 pm
Virtual
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