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October 2026

Marfan Connect

Are you diagnosed with Marfan syndrome or a related disorder? Are you between 30 and 50 years old? Would you like to connect with others living with Marfan syndrome and related disorders for support and to share resources and information? If so, this group is for you.
01 Oct
5:00 pm
Virtual
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Simposio Internacional en Barcelona

Simposio Internacional en Barcelona: Claves para una vida plena con Marfan, Loeys-Dietz, VEDS y Stickler. Este programa se celebrará íntegramente en español. Las presentaciones, impartidas por expertos médicos de España y otros países, estarán dirigidas a personas y familias que conviven con estas condiciones. Los asistentes tendrán la oportunidad de hacer preguntas a los especialistas, […]
03 Oct
8:00 am - 4:30 pm
Meliá Barcelona Sarrià
Av. de Sarrià, 50, Les Corts, Barcelona, Spain, 08029
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Teen Game Night

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in the fun. We will be playing games using the Jackbox game series.
05 Oct
7:30 pm
Zoom
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Stickler Connect

You are warmly invited to join our support group for individuals diagnosed with Stickler syndrome. This group offers a welcoming space to connect with others who understand your experiences and share valuable resources and information. Join us every first Wednesday of the month at 8:00 PM Eastern Time to share stories, find support, and build […]
07 Oct
8:00 pm - 9:00 pm
Zoom
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LDS Connect

Please Note: Due to our scheduling conflicts with our Conference in Atlanta, this group will meet on Thursday July 3, 2025 at 7pm EST. (instead of Thursday July 10, 2025) If you have been diagnosed with LDS, this group is specifically for you! This is an opportunity to meet others with LDS and talk about […]
08 Oct
7:00 pm - 8:00 pm
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London Symposium: Living Better with Marfan, Loeys-Dietz, VEDS, and Stickler

Due to overwhelming response and due to room safety capacity limits, we must cap registration at this time. Please reach out to Eileen if you have questions enovins@marfan.org. Please join us for our Second International Symposium/London: Living Better with Marfan, Loeys-Dietz, VEDS and Stickler. The presentations, which will feature medical experts from the UK and from […]
10 Oct
8:00 am - 4:30 pm
Radisson Blu Edwardian Bloomsbury Street Hotel, London
9-13 Bloomsbury St, WC1B 3QD, London, UK
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Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful.
13 Oct
6:00 pm - 7:00 pm
Virtual
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Teen Talk

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in for a talk with other teens they can relate to.
19 Oct
7:30 pm - 9:00 pm
Zoom
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