A Month of Gratitude & Self-Care 2026
During Mental Health Awareness Month, we’re sharing some quick ideas for focusing on you.
Resource Library
Explore hundreds of free resources to help you on your journey.
Coping With Grief & Loss
Coping with Grief & Loss – Losing Someone with a Genetic Aortic and Vascular Condition If you’ve lost a loved one to a genetic aortic and vascular condition, know that we are so very sorry for your loss. Whether it’s a child, young adult, older adult, or a family member, friend, or someone you know […]
Stimulant Use in Children with Genetic Aortic and Vascular Conditions
A concise, evidence-based clinical guidance document from the Marfan Foundation in collaboration with Luciana Young, MD, offering families, pediatricians, and cardiologists practical information on evaluating and treating ADHD in children with genetic aortic and vascular conditions such as Marfan syndrome, Loeys-Dietz syndrome, and Vascular Ehlers-Danlos syndrome. This article is intended for educational purposes only and […]
COVID-19 Vaccine Statements
The Foundation’s Professional Advisory Board has issued an updated 2025 statement regarding COVID-19 vaccinations for both adults and children with Marfan, Loeys-Dietz, and VEDS, and related conditions. This guidance reflects the latest research and clinical expertise to help individuals and families make informed decisions about vaccination and ongoing health protection. If you have additional medical […]
GI Issues Q&A
What are the most common gastrointestinal issues in people with connective tissue conditions? The answer to this question and more can be found in this document from Tony Guerrerio, MD, PhD.
Información esencial para elPERSONAL DE ENFERMERÍA ESCOLAR
A medida que las necesidades de salud de las escuelas han cambiado desde 1902, el papel de la enfermería escolar ha evolucionado para satisfacer esas necesidades cambiantes. La enfermera escolar desempeña un papel de liderazgo importante en la prevención de enfermedades o lesiones, la identificación de problemas médicos a través de programas de detección y […]
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