Diagnosis Archives - Marfan Foundation

Three Keys to a Positive Outcome

Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...

Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx,...

On the morning of December 3, 2020, Nick Metz, a 16-year-old in California, was schooling from...

Jasmine’s family (l-r) Mom Joanne Duffey, dad Alvin Duffey, Jasmine, sister Jawanda Duffey, and...

Diagnosis, Healthcare Management, Research November 23, 2020February 24, 2021

If you have a connective tissue condition or are seeking an evaluation for one, you know that you...

Awareness, Diagnosis, Quality of Life September 2, 2020July 21, 2021

I was diagnosed with Marfan syndrome at the age of ten during a visit to the Mayo Clinic on...

Awareness, Diagnosis, Quality of Life February 20, 2019February 24, 2021

I’ve been reflecting recently. My son, Julian, just turned 8. That makes him the same age that I...