Diagnosis Archives - Marfan Foundation

Awareness, Diagnosis August 30, 2024September 3, 2024

Aortic Dissection Survivor David Noe’s Experience Leads to Family Members’ Marfan Diagnoses and Preventative Surgeries

“All of a sudden, I just had a crushing chest pain.” David Noe, who had spent large...

Awareness, Diagnosis, Education February 9, 2024July 31, 2024

I was diagnosed with Marfan Syndrome at birth. My father had a spontaneous mutation, and he passed...

Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...

In 1971, at the young age of two, Amy Grimshaw had a routine appointment with a doctor at the Army...

Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...

Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx,...

On the morning of December 3, 2020, Nick Metz, a 16-year-old in California, was schooling from...