Diagnosis Archives - Marfan Foundation

My Doctor Knew Me – He Knew Amy

In 1971, at the young age of two, Amy Grimshaw had a routine appointment with a doctor at the Army...

Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...

Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx,...

On the morning of December 3, 2020, Nick Metz, a 16-year-old in California, was schooling from...

Jasmine’s family (l-r) Mom Joanne Duffey, dad Alvin Duffey, Jasmine, sister Jawanda Duffey, and...

Diagnosis, Healthcare Management, Research November 23, 2020February 24, 2021

If you have a connective tissue condition or are seeking an evaluation for one, you know that you...

Awareness, Diagnosis, Quality of Life September 2, 2020July 21, 2021

I was diagnosed with Marfan syndrome at the age of ten during a visit to the Mayo Clinic on...