A Trip to Conference Leads to a Marfan Diagnosis for 30+ Family Members
Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...
Blog Category: Diagnosis
My Doctor Knew Me – He Knew Amy
In 1971, at the young age of two, Amy Grimshaw had a routine appointment with a doctor at the Army...
Three Keys to a Positive Outcome
Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...
Beauty Enthusiast Overcomes Obstacles
Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx,...
Nick’s Journey in Honor of Connor’s Big Heart
On the morning of December 3, 2020, Nick Metz, a 16-year-old in California, was schooling from...
Losing My Sight Saved My Life
Jasmine’s family (l-r) Mom Joanne Duffey, dad Alvin Duffey, Jasmine, sister Jawanda Duffey, and...
Your Questions Answered: Medical Geneticist and Genetic Testing
If you have a connective tissue condition or are seeking an evaluation for one, you know that you...
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Together, We Can Know the Signs
and Fight for Victory