Knowledge of Marfan Syndrome Fosters Longevity, Drives Purpose
I was diagnosed with Marfan Syndrome at birth. My father had a spontaneous mutation, and he passed...
Know the Signs, Fight for Victory
I was diagnosed with Marfan Syndrome at birth. My father had a spontaneous mutation, and he passed...
Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...
In 1971, at the young age of two, Amy Grimshaw had a routine appointment with a doctor at the Army...
Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...
Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx,...
On the morning of December 3, 2020, Nick Metz, a 16-year-old in California, was schooling from...
Jasmine’s family (l-r) Mom Joanne Duffey, dad Alvin Duffey, Jasmine, sister Jawanda Duffey, and...